Houlihan Bethlyn Vergo, Drainoni Mari-Lynn, Warner Grace, Nesathurai Shanker, Wierbicky Jane, Williams Steven
Center for Health Quality, Outcomes and Economic Research, Bedford, MA 01730, USA.
Disabil Rehabil. 2003 Apr 22;25(8):422-31. doi: 10.1080/0963828031000071750.
A pilot study was undertaken regarding the effect of Internet access on health-related quality of life (HRQoL) and self-reported impact for people with spinal cord injuries (SCI). This study is unique in providing free Internet access and looking at benefits for people with disabilities.
HRQoL was measured using indicators of global health and social isolation at baseline and after 6 to 19 months of use via telephone interviews on a convenience sample of 23 adults with SCI. Additionally, monthly telephone surveys measured usage patterns, recreation, and self-reported impact. Both quantitative and qualitative analyses were conducted. Bivariate tests for differences in proportions and paired T-tests were conducted. Qualitatively, conceptual categories of impact were created using the Constant Comparative Method.
Qualitatively, the predominant benefit was quality of life, mentioned by 61% of participants 46% of months surveyed, with quantitative trends towards improved emotional health. Ease of access to information, social connection, and quality of information were also frequently reported, with modest support from quantitative data.
The study's persuasive qualitative results suggest the Internet has particular benefit to people with disabilities and that rehabilitation goals should include leisure. Further scientific research is strongly warranted.
针对互联网接入对脊髓损伤（SCI）患者健康相关生活质量（HRQoL）及自我报告影响开展了一项试点研究。本研究的独特之处在于提供免费互联网接入并观察其对残疾人士的益处。
通过对23名成年SCI患者的便利样本进行电话访谈，在基线以及使用6至19个月后，使用全球健康和社会隔离指标来测量HRQoL。此外，每月进行电话调查以测量使用模式、娱乐活动及自我报告的影响。同时进行了定量和定性分析。进行了比例差异的双变量检验和配对T检验。定性方面，采用持续比较法创建了影响的概念类别。
定性来看，主要益处是生活质量，61%的参与者在46%的调查月份中提到了这一点，定量数据显示情绪健康有改善趋势。信息获取的便利性、社交联系和信息质量也经常被提及，定量数据提供了一定支持。
该研究有说服力的定性结果表明，互联网对残疾人士有特别益处，康复目标应包括休闲。强烈需要进一步开展科学研究。
