von Vogelsang Ann-Christin, Wengström Yvonne, Forsberg Christina
Department of Neurosurgery, Karolinska University Hospital, Stockholm, Sweden.
J Adv Nurs. 2004 Dec;48(6):551-9. doi: 10.1111/j.1365-2648.2004.03243.x.
This paper reports an investigation into the effects of increased information for patients treated for intracranial aneurysm rupture.
Intracranial aneurysm rupture is a grave condition that requires immediate care. It can be treated in two different ways, by surgery or by endovascular procedure. Intracranial aneurysm rupture can mean great changes in life, both for the patient and their spouse or relatives.
An intervention study was conducted using a quasi-experimental design. Participants were recruited consecutively over a period of 12 months and consisted of 62 patients treated for intracranial aneurysm rupture at a Swedish neurosurgical clinic. They were divided into two groups: an intervention group, who received written and oral information, and a comparison group, who received only oral information.
Self-report questionnaires were sent to patients' homes 1-3 months after the aneurysm rupture. The questionnaires consisted of one study-specific instrument with questions about understanding of the information given and the State-Trait Anxiety Inventory, which measures worry or anxiety.
The intervention group considered that the information that they received was somewhat easier to understand and that it corresponded more closely to their needs, compared with the comparison group. The majority of patients in both groups expressed a need for more and improved information. Levels of anxiety were high for the majority of patients, but no significant difference was evident between groups. Furthermore, the results showed that the majority of patients were given information without their spouse or relatives being present.
Increased information seems to be needed for these patients. There is a need to continue the work to improve information-giving to them and their relatives.
本文报告了一项关于增加颅内动脉瘤破裂患者信息的效果调查。
颅内动脉瘤破裂是一种严重疾病，需要立即治疗。可通过手术或血管内介入两种不同方式进行治疗。颅内动脉瘤破裂对患者及其配偶或亲属来说，可能意味着生活发生巨大变化。
采用准实验设计进行干预研究。在12个月期间连续招募参与者，包括瑞典一家神经外科诊所62例接受颅内动脉瘤破裂治疗的患者。他们被分为两组：干预组，接受书面和口头信息；对照组，仅接受口头信息。
动脉瘤破裂后1至3个月，向患者家中发送自我报告问卷。问卷包括一份针对该研究的工具，其中有关于对所提供信息的理解的问题，以及测量担忧或焦虑的状态-特质焦虑量表。
与对照组相比，干预组认为他们收到的信息更容易理解，且更符合他们的需求。两组中的大多数患者都表示需要更多且更好的信息。大多数患者的焦虑水平较高，但两组之间没有明显差异。此外，结果表明，大多数患者在没有配偶或亲属在场的情况下就得到了信息。
这些患者似乎需要更多信息。有必要继续努力，改善向他们及其亲属提供信息的工作。
