评估居家运动神经元病患者的姑息治疗效果。

Assessing palliative care outcomes for people with motor neurone disease living at home.

作者信息

Hughes Rhidian A, Aspinal Fiona, Higginson Irene J, Addington-Hall Julia M, Dunckley Maria, Faull Christina, Sinha Anu

机构信息

Centre for Health and Social Care, School for Policy Studies, University of Bristol, Bristol, BS8 1TZ, UK.

出版信息

Int J Palliat Nurs. 2004 Sep;10(9):449-53. doi: 10.12968/ijpn.2004.10.9.16051.

DOI:10.12968/ijpn.2004.10.9.16051

PMID:15549006

Abstract

A number of palliative care outcome measures are used to facilitate the provision of palliative care. This short article reports the use of one palliative care outcome measure, the Palliative care Outcome Scale, with people with motor neurone disease (MND) living at home. The outcome measure was generally viewed positively by those involved. However, problems with this scale itself point to the need for a specialized instrument to assess palliative care outcomes for people living with MND.

摘要

许多姑息治疗结果测量指标被用于促进姑息治疗的提供。这篇短文报告了一种姑息治疗结果测量指标——姑息治疗结果量表，在居家运动神经元病（MND）患者中的使用情况。参与其中的人员对该结果测量指标总体评价积极。然而，该量表本身存在的问题表明，需要一种专门的工具来评估MND患者的姑息治疗结果。