Bjornsen Katherine D
Division of Pediatric Cardiology, Children's Hospital of Iowa, University of Iowa Hospitals and Clinics, 200 Hawkins Drive, Iowa City, IA 52242, USA.
Nurs Clin North Am. 2004 Dec;39(4):715-26. doi: 10.1016/j.cnur.2004.07.009.
Unfortunately, despite recommendations for educational training of ACHD health care providers and the goal to create regional ACHD centers, current needs still far outweigh appropriate available services. From a practical standpoint, we will need to work from our current models of health care delivery, which vary because of geographic and institutional issues and the availability of appropriate resources, toward the ideal goal of regional ACHD centers. Successful transition of adolescents and adults with CHD requires collaboration and planning between the pediatric health care team and the ACHD health care team. Good communication and an atmosphere of mutual respect are essential. All members of the ACHD health care team need to be committed to improving the process of transition for the adolescent and adult with CHD. The advanced practice nurse (CNS or ARNP) from both the pediatric program and the adult program are often key players in this process. As ACHD health care providers, we must work toward decreasing barriers to care and become organized advocates for our patients. Ultimately, our goal is not only to provide a smooth transition from one model of care to another, it is to create a health care delivery system that will maximize the lifelong potential and function of adults with congenital heart disease.
不幸的是,尽管有针对先天性心脏病(ACHD)医疗服务提供者的教育培训建议,以及建立区域性ACHD中心的目标,但目前的需求仍远远超过了现有的适当服务。从实际角度来看,我们将需要基于当前的医疗服务模式开展工作,这些模式因地理和机构问题以及适当资源的可获得性而有所不同,朝着区域性ACHD中心的理想目标努力。患有先天性心脏病的青少年和成人的成功过渡需要儿科医疗团队和ACHD医疗团队之间的协作与规划。良好的沟通和相互尊重的氛围至关重要。ACHD医疗团队的所有成员都需要致力于改善患有先天性心脏病的青少年和成人的过渡过程。来自儿科项目和成人项目的高级执业护士(临床护理专家或高级注册护士从业者)通常是这一过程中的关键角色。作为ACHD医疗服务提供者,我们必须努力减少医疗障碍,并成为我们患者的有组织的倡导者。最终,我们的目标不仅是提供从一种护理模式到另一种护理模式的平稳过渡,更是要创建一个能够最大限度发挥先天性心脏病成人终身潜力和功能的医疗服务体系。