Ibach Bernd, Koch Horst, Koller Manfred, Hajak Göran, Putzhammer Albert
Für die Arbeitsgruppe Gerontopsychiatrie der psychiatrischen Versorgungskrankenhäuser Deutschlands.
Psychiatr Prax. 2004 Nov;31 Suppl 1:S120-2. doi: 10.1055/s-2004-828467.
Caregiver counselling is an indispensable feature of current concepts for dementia treatment. Self-support groups and psychoeducative programms for caregivers of patients with Alzheimer's disease may reduce the burden of nursing and psychological strain. Specific caregiver needs from patients with frontotemporal lobar dementia (FTLD [frontotemporal dementia, semantic dementia, progressive aphasia, corticobasal degeneration]) are only partially taken into account. We conducted a German wide epidemiologic study which revealed that specific counselling for supporting relatives and caregivers of patients with FTLD is only fragmentary in hospital services for old age psychiatry. In most cases, they are referred to the local Alzheimer's disease Associations (89 %). Besides that, the existence of large hospital care units has significant negative repercussions on psychosocial supply for caregivers of patients with FTLD. To establish decentralized support units by these hospitals would lead to a significant improvement of medical and social care in this field.
照顾者咨询是当前痴呆症治疗理念中不可或缺的一部分。针对阿尔茨海默病患者照顾者的自助小组和心理教育项目可能会减轻护理负担和心理压力。额颞叶痴呆（FTLD[额颞叶痴呆、语义性痴呆、进行性失语、皮质基底节变性]）患者照顾者的特定需求仅得到部分关注。我们在德国开展了一项流行病学研究，结果显示，在老年精神病学的医院服务中，为FTLD患者的亲属和照顾者提供的特定咨询非常零散。在大多数情况下，他们会被转介到当地的阿尔茨海默病协会（89%）。除此之外，大型医院护理单元的存在对FTLD患者照顾者的心理社会支持有显著的负面影响。这些医院建立分散式支持单元将显著改善该领域的医疗和社会护理。
