Hung Jen Wen, Wu Yee-Hwa, Yeh Chao-Hsing
Rehabilitation Department, Chang Gung Memorial Hospital, Kaohsiung, Taiwan.
Psychooncology. 2004 Dec;13(12):898-903. doi: 10.1002/pon.868.
To evaluate whether parental stress differs between parents of children with physical disabilities and parents of children with cancer.
Parents (92 with disabled children and 89 with children with cancer) were recruited to complete the measures of the Parenting Stress Index/Short Form.
Diagnostic group differences were found across the parenting stress measures used in this study. The parents of children with cancer experienced significantly higher levels of stress compared with the parents of disabled children. The mean scores of each subscale (PD, PCDI, and DC) and total score scales in both groups approached were above the 90th percentile of Abidin's normative sample (PD = 36, PCDI = 27, DC = 36, Total = 91), except for the PD and DC subscales in the disabled children group, which approached the 90th percentile.
The results of the study suggest that most of the parents in our sample should be referred for more in-depth diagnostic study and professional counseling in stress management. Therefore, a normative score on the PSI/SF for Taiwanese parents with healthy children should be established to identify whether differences exist between parents whose children are healthy and those whose children have been diagnosed with a chronic illness.
评估身体残疾儿童的父母与患癌儿童的父母之间的压力是否存在差异。
招募父母（92名残疾儿童的父母和89名患癌儿童的父母）完成《养育压力指数简表》的测量。
在本研究使用的养育压力测量指标上发现了诊断组差异。与残疾儿童的父母相比，患癌儿童的父母经历的压力水平显著更高。两组中每个子量表（PD、PCDI和DC）以及总分量表的平均分均接近阿比丁常模样本的第90百分位数（PD = 36，PCDI = 27，DC = 36，总分 = 91），残疾儿童组的PD和DC子量表除外，接近第90百分位数。
研究结果表明，我们样本中的大多数父母应接受更深入的诊断研究和压力管理方面的专业咨询。因此，应建立台湾健康儿童父母的PSI/SF常模分数，以确定孩子健康的父母与孩子被诊断患有慢性病的父母之间是否存在差异。
