Uzark Karen, Jones Karen
Cardiac Process Improvement & Clinical Outcomes Research, Children's Hospital Medical Center, Cincinnati, Ohio 45229, USA.
J Pediatr Health Care. 2003 Jul-Aug;17(4):163-8. doi: 10.1067/mph.2003.22.
Whereas the stress precipitated by the diagnosis of an infant's congenital abnormality is well recognized, this study examined parenting stress reported by parents of children older than 2 years with heart disease.
Abidin's Parenting Stress Index was administered to parents of children ages 2 to 12 years with known heart disease during a cardiology outpatient clinic visit.
Parents of children with heart disease were more likely than the normative population to report excessive parenting stress, especially related to characteristics of the child that make them difficult to parent. Approximately 1 in 5 parents expressed clinically significant levels of stress. These parents expressed difficulty with setting limits or discipline of the child with heart disease. Parenting stress was not related to the severity of the child's heart disease, family socioeconomic status, or time since most recent surgery. Older age of the child was associated with higher parenting stress scores.
Clinicians must assess parenting stress at each health care visit to provide appropriate support and anticipatory guidance to families of children with heart disease.
尽管婴儿先天性异常诊断所引发的压力已得到充分认识，但本研究调查了2岁以上患有心脏病儿童的父母所报告的育儿压力。
在心脏病门诊就诊期间，对年龄在2至12岁、患有已知心脏病的儿童的父母进行阿比丁育儿压力指数调查。
与正常人群相比，患有心脏病儿童的父母更有可能报告过度的育儿压力，尤其是与孩子难以管教的特征相关的压力。约五分之一的父母表示有临床显著水平的压力。这些父母表示在对患有心脏病的孩子设定界限或进行管教方面存在困难。育儿压力与孩子心脏病的严重程度、家庭社会经济状况或距最近一次手术的时间无关。孩子年龄较大与较高的育儿压力得分相关。
临床医生在每次医疗就诊时都必须评估育儿压力，以便为患有心脏病儿童的家庭提供适当的支持和预期指导。
