评估青少年胰岛素依赖型糖尿病患者：一项使用视觉疾病叙事和访谈的多视角试点研究。

Assessing adolescents with insulin-dependent diabetes mellitus: a multiple perspective pilot study using visual illness narratives and interviews.

作者信息

Buchbinder Mara H, Detzer Mark J, Welsch Robert L, Christiano Ann S, Patashnick Jennifer L, Rich Michael

机构信息

Department of Psychology, Dartmouth College, Hanover, and Steps Toward Adult Responsibility (STAR) Program, Dartmouth-Hitchcock Medical Center, Lebanon, New Hampshire, USA.

出版信息

J Adolesc Health. 2005 Jan;36(1):71.e9-13. doi: 10.1016/j.jadohealth.2004.02.019.

DOI:10.1016/j.jadohealth.2004.02.019

PMID:15661602

Abstract

This study explored the illness experiences of adolescents with insulin-dependent diabetes mellitus (IDDM) using Video Intervention/Prevention Assessment (VIA). Five adolescents with IDDM were asked to videotape 8 hours of their lives over a 1-month period. At the conclusion of the study, the primary investigator interviewed each adolescent and their diabetes clinician. VIA visual illness narratives and follow-up interviews provided clinically important, previously unknown information about how adolescents live with diabetes, including the negative and positive influences of diabetes on the family unit and the individual, that parental involvement was associated with adolescents' diabetes control, and that gender may be a significant mediating factor in control.

摘要

本研究采用视频干预/预防评估（VIA）方法，探索了胰岛素依赖型糖尿病（IDDM）青少年的患病经历。五名IDDM青少年被要求在1个月的时间内拍摄8小时他们的生活。在研究结束时，第一作者对每位青少年及其糖尿病临床医生进行了访谈。VIA视觉患病叙事和后续访谈提供了关于青少年如何与糖尿病共处的临床上重要的、此前未知的信息，包括糖尿病对家庭单位和个人的消极和积极影响，父母的参与与青少年的糖尿病控制相关，以及性别可能是控制方面的一个重要调节因素。