Haijes Hanneke A, van Thiel Ghislaine J M W
Department Medical Humanities, Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht, The Netherlands.
Pediatr Res. 2016 May;79(5):676-83. doi: 10.1038/pr.2015.279. Epub 2015 Dec 31.
Meaningful child participation in medical research is seen as important. In order to facilitate further development of participatory research, we performed a systematic literature study to describe and assess the available knowledge on participatory methods in pediatric research. A search was executed in five databases: PubMed, CINAHL, PsycINFO, Scopus, and Cochrane. After careful screening of relevant papers, finally 24 documents were included in our analysis. Literature on participatory methods in pediatric research appears generally to be descriptive, whereby high-quality evidence is lacking. Overall, five groups of participatory methods for children could be distinguished: observational, verbal, written, visual, and active methods. The choice for one of these methods should be based on the child's age, on social and demographic characteristics, and on the research objectives. To date, these methods are still solely used for obtaining data, yet they are suitable for conducting meaningful participation. This may result in a successful partnership between children and researchers. Researchers conducting participatory research with children can use this systematic review in order to weigh the current knowledge about the participatory methods presented.
儿童有意义地参与医学研究被视为很重要。为了促进参与式研究的进一步发展，我们进行了一项系统的文献研究，以描述和评估儿科研究中参与式方法的现有知识。在五个数据库中进行了检索：PubMed、CINAHL、PsycINFO、Scopus和Cochrane。在仔细筛选相关论文后，最终有24篇文献纳入我们的分析。儿科研究中参与式方法的文献总体上似乎是描述性的，缺乏高质量证据。总体而言，可区分出儿童参与式方法的五组：观察法、口头法、书面法、视觉法和主动法。选择这些方法之一应基于儿童的年龄、社会和人口特征以及研究目标。迄今为止，这些方法仍仅用于获取数据，但它们适合进行有意义的参与。这可能会促成儿童与研究人员之间的成功合作。进行儿童参与式研究的研究人员可以利用这一系统评价来权衡有关所呈现参与式方法的现有知识。
