Acharya Tara, Rab Mohammed Abdur, Singer Peter A, Daar Abdallah S
Joint Center for Bioethics, University of Toronto, 88 College Street, Toronto, ON – M5G 1L4, Canada.
Health Res Policy Syst. 2005 Jan 21;3(1):1. doi: 10.1186/1478-4505-3-1.
While innovations in medicine, science and technology have resulted in improved health and quality of life for many people, the benefits of modern medicine continue to elude millions of people in many parts of the world. To assess the potential of genomics to address health needs in EMR, the World Health Organization's Eastern Mediterranean Regional Office and the University of Toronto Joint Centre for Bioethics jointly organized a Genomics and Public Health Policy Executive Course, held September 20th-23rd, 2003, in Muscat, Oman. The 4-day course was sponsored by WHO-EMRO with additional support from the Canadian Program in Genomics and Global Health. The overall objective of the course was to collectively explore how to best harness genomics to improve health in the region. This article presents the course findings and recommendations for genomics policy in EMR. METHODS: The course brought together senior representatives from academia, biotechnology companies, regulatory bodies, media, voluntary, and legal organizations to engage in discussion. Topics covered included scientific advances in genomics, followed by innovations in business models, public sector perspectives, ethics, legal issues and national innovation systems. RESULTS: A set of recommendations, summarized below, was formulated for the Regional Office, the Member States and for individuals.* Advocacy for genomics and biotechnology for political leadership;* Networking between member states to share information, expertise, training, and regional cooperation in biotechnology; coordination of national surveys for assessment of health biotechnology innovation systems, science capacity, government policies, legislation and regulations, intellectual property policies, private sector activity;* Creation in each member country of an effective National Body on genomics, biotechnology and health to:- formulate national biotechnology strategies- raise biotechnology awareness- encourage teaching and training of biotechnology- devise integration of biotechnology within national health systems. CONCLUSION: The recommendations provide the basis for a road map for EMR to take steps to harness biotechnology for better and more equitable health. As a result of these recommendations, health ministers from the region, at the 50th Regional Committee Meeting held in October 2003, have urged Member States to establish national bodies of biotechnology to formulate a strategic vision for developing biotechnology in the service of the region's health. These efforts promise to raise the profile of genomics in EMR and increase regional cooperation in this exciting new field.
尽管医学、科学和技术的创新已使许多人的健康状况和生活质量得到改善,但现代医学的益处仍未惠及世界许多地区的数百万人。为评估基因组学满足东地中海区域卫生需求的潜力,世界卫生组织东地中海区域办事处与多伦多大学联合生物伦理中心于2003年9月20日至23日在阿曼马斯喀特联合举办了一次基因组学与公共卫生政策高级行政课程。为期4天的课程由世卫组织东地中海区域办事处主办,加拿大基因组学与全球健康项目提供额外支持。该课程的总体目标是共同探讨如何最好地利用基因组学改善该区域的健康状况。本文介绍了该课程的研究结果以及对东地中海区域基因组学政策的建议。
该课程汇聚了来自学术界、生物技术公司、监管机构、媒体、志愿组织和法律组织的高级代表进行讨论。涵盖的主题包括基因组学的科学进展,随后是商业模式创新、公共部门观点、伦理、法律问题和国家创新体系。
为区域办事处、成员国和个人制定了一系列建议,总结如下:
向政治领导层宣传基因组学和生物技术;
成员国之间建立网络,以分享信息、专业知识、培训,并在生物技术领域开展区域合作;协调国家调查,以评估卫生生物技术创新体系、科学能力、政府政策、法律法规、知识产权政策、私营部门活动;
在每个成员国设立一个有效的基因组学、生物技术与健康国家机构,以:
制定国家生物技术战略;
提高对生物技术的认识;
鼓励生物技术教学与培训;
设计将生物技术纳入国家卫生系统的方案。
这些建议为东地中海区域采取措施利用生物技术实现更好、更公平的健康状况提供了路线图基础。由于这些建议,该区域的卫生部长们在2003年10月举行的第50届区域委员会会议上敦促成员国设立国家生物技术机构,为发展服务于该区域卫生的生物技术制定战略愿景。这些努力有望提高东地中海区域对基因组学的关注度,并加强这一令人兴奋的新领域的区域合作。