Belam Judith, Harris Gill, Kernick David, Kline Frances, Lindley Krissy, McWatt Jayne, Mitchell Annie, Reinhold Debbie
School of Psychology, University of Exeter, Exeter.
Br J Gen Pract. 2005 Feb;55(511):87-93.
Migraine is poorly managed in primary care despite a high level of morbidity. The majority of sufferers use non-prescription medications and are reluctant to seek help but the reasons for this are not understood.
The aim of this study was to develop a research partnership between migraine sufferers and healthcare professionals to synthesise tacit and explicit knowledge in the area. Building upon this partnership, a further aim was to explore what it is to suffer with migraine from patients' perspectives in order to inform health service delivery.
Qualitative interview study involving healthcare professionals and patient researchers.
A purposeful sample of eight migraine sufferers who had attended a local intermediate care headache clinic.
A consensual qualitative approach.
Migraine had a high and unrecognised impact on quality of life. 'Handling the beast' was a central metaphor that resonated with the experience of all sufferers who sought to control their problem in different ways. Three major themes were identified: making sense of their problem; actively doing something about it either through self-help or professional advice; being resigned to it.
Despite a significant impact on the quality of life of migraine sufferers and their families, their needs remain largely unmet. Useful insights can be obtained when patients and professionals work together in true partnership but the time and effort involved should not be underestimated. Further research is needed to identify why there are major deficiencies in delivering care in this common problem.
尽管偏头痛发病率很高，但在初级医疗保健中却未得到有效管理。大多数患者使用非处方药，且不愿寻求帮助，但其原因尚不清楚。
本研究的目的是在偏头痛患者和医疗保健专业人员之间建立研究伙伴关系，以整合该领域的隐性知识和显性知识。在此伙伴关系的基础上，进一步的目的是从患者的角度探索偏头痛患者的感受，以便为医疗服务提供参考。
涉及医疗保健专业人员和患者研究人员的定性访谈研究。
从当地中级护理头痛诊所选取的八名偏头痛患者的有目的样本。
采用共识定性方法。
偏头痛对生活质量有高度且未被认识到的影响。“驯服这头野兽”是一个核心隐喻，与所有试图以不同方式控制问题的患者的经历产生共鸣。确定了三个主要主题：理解自己的问题；通过自助或专业建议积极采取措施解决问题；听之任之。
尽管偏头痛对患者及其家人的生活质量有重大影响，但其需求在很大程度上仍未得到满足。当患者和专业人员真正合作时，可以获得有用的见解，但所涉及的时间和精力不应被低估。需要进一步研究以确定在这个常见问题的护理提供方面为何存在重大缺陷。
