Boote Jonathan, Barber Rosemary, Cooper Cindy
Sheffield Health and Social Research Consortium, Fulwood House, Old Fulwood Road, Sheffield, S10 3TH, UK.
Health Policy. 2006 Feb;75(3):280-97. doi: 10.1016/j.healthpol.2005.03.012.
Consumer involvement in NHS research is Department of Health policy within the UK. Despite the existence of policy directives and guidance, until recently there has been no consensus among consumers and researchers about what it means to involve consumers successfully in NHS research. This paper discusses the value of consensus research in this policy area, and presents the detailed findings of a Delphi study carried out to reach consensus on principles and indicators of successful consumer involvement in NHS research. Study participants, comprising consumers, researchers and consumer-researchers, were identified using a purposive sampling strategy. Consensus was reached on eight clear and valid principles of successful consumer involvement in NHS research, with each principle having at least one clear and valid indicator. Subgroup analysis revealed few significant differences in how consumers, researchers and consumer-researchers rated the principles and indicators. The implications and limitations of the study are discussed. Further research is needed to assess: (1) the usefulness of the principles and indicators for differing models of consumer involvement, health research methodologies, and subject areas within health research; and (2) the impact of 'successful' consumer involvement on health research processes and outcomes.
消费者参与英国国民医疗服务体系（NHS）的研究是英国卫生部的一项政策。尽管存在政策指令和指导意见，但直到最近，消费者和研究人员对于如何成功让消费者参与NHS研究的含义仍未达成共识。本文讨论了在这一政策领域进行共识研究的价值，并展示了一项德尔菲研究的详细结果，该研究旨在就消费者成功参与NHS研究的原则和指标达成共识。采用目的抽样策略确定了包括消费者、研究人员和消费者研究人员在内的研究参与者。就消费者成功参与NHS研究的八项明确且有效的原则达成了共识，每项原则都至少有一项明确且有效的指标。亚组分析显示，消费者、研究人员和消费者研究人员对这些原则和指标的评分几乎没有显著差异。本文讨论了该研究的意义和局限性。需要进一步开展研究以评估：（1）这些原则和指标对于不同的消费者参与模式、健康研究方法以及健康研究中的主题领域的实用性；（2）“成功的”消费者参与对健康研究过程和结果的影响。
