Department of Epidemiology and Public Health, Collaborative Centre for Inclusion Health, Institute of Epidemiology and Health Care, University College London, London, UK.
Department of Physiotherapy, Faculty of Health, Social Care and Education, Kingston University and St George's University of London, London, UK.
Health Expect. 2022 Oct;25(5):2203-2212. doi: 10.1111/hex.13397. Epub 2021 Dec 10.
People experiencing homelessness (PEH) have poorer health than housed people but face barriers accessing care and being involved in research. As an often-ignored group, their contribution to help shape research that is for and about them is essential, as it can strengthen the research proposal, in turn facilitating research and outcomes that are relevant to this vulnerable group.
Six people with experience of homelessness attended a PPI consultation aided by Pathway, a UK homeless peer advocacy charity, which coordinates an 'Experts by Experience' group. We present reflections on conducting PPI with PEH that informed the development of a physiotherapy research proposal. Kolb's Experiential Learning Cycle guided reflections across four stages: (1) describing the PPI experience; (2) reviewing and reflecting on the PPI experience; (3) learning from the PPI experience; and (4) planning and trying out learning.
Reflections highlighted the importance of: working closely with an advocacy organisation and leader to reach under-served people; the diversity of experiences; using familiar venues, contingency and budget planning; flexibility and 'allowing time; talking less; listening more'; planning for early and ongoing PPI, and the potential of mobile 'one-off' PPI outreach models to reach vulnerable groups.
Kolb's Experiential Learning Cycle aided team reflection on feedback from PEH, which helped refine and strengthen a physiotherapy research proposal. The project was unfunded. However, a reflective model helped maximize learning and impact including for future PPI and research. The novel application of Kolb's Experiential Learning Cycle provided structure, facilitated reflection and enhanced individual and collective learning and may benefit capturing learning from PPI with other vulnerable populations.
We highlight how a PPI consultation with people with experience of homelessness helped shape a funding proposal. Additionally, the reflections of the experts by experience team leader are included.
无家可归者(PEH)的健康状况比有房者差,但他们在获得医疗服务和参与研究方面面临障碍。作为一个经常被忽视的群体,他们为帮助塑造针对他们的研究做出贡献至关重要,因为这可以增强研究提案,从而促进对这一弱势群体具有重要意义的研究和结果。
六名有过无家可归经历的人在英国无家可归者倡导慈善机构 Pathway 的帮助下参加了一项 PPI 咨询,该慈善机构协调了一个“经验丰富的专家”小组。我们介绍了在与 PEH 进行 PPI 方面的反思,这些反思为物理治疗研究提案的制定提供了信息。科尔布的体验式学习周期指导了四个阶段的反思:(1)描述 PPI 体验;(2)回顾和反思 PPI 体验;(3)从 PPI 体验中学习;(4)计划和尝试学习。
反思强调了以下几点的重要性:与倡导组织和领导者密切合作,以接触服务不足的人群;体验的多样性;使用熟悉的场地、应急和预算规划;灵活性和“留出时间”;少说话;多倾听;提前和持续进行 PPI 规划,以及移动“一次性”PPI 外展模型在接触弱势群体方面的潜力。
科尔布的体验式学习周期帮助团队反思了来自 PEH 的反馈,这有助于完善和加强物理治疗研究提案。该项目没有资金。然而,反思模型有助于最大限度地学习和影响,包括未来的 PPI 和研究。科尔布体验式学习周期的新颖应用提供了结构,促进了反思,并增强了个人和集体学习,可能有助于从与其他弱势群体的 PPI 中捕获学习。
我们强调了与有过无家可归经历的人进行 PPI 咨询如何帮助塑造资助提案。此外,还包括了经验丰富的专家团队负责人的反思。