O'Donnell Máire, Entwistle Vikki
Health Services Research Unit, University of Aberdeen, Aberdeen, UK.
Health Policy. 2004 Aug;69(2):229-38. doi: 10.1016/j.healthpol.2003.12.011.
This paper reports findings from a postal questionnaire survey and in-depth interviews with UK funders of health-related research that explored whether, why and how they promote consumer involvement in research projects. Many UK funders of health-related research are adopting a policy of promoting consumer involvement in research projects. Telephone interviews revealed they have several reasons for doing so, and that they vary in the ways they encourage and support researchers to involve consumers. For some, descriptions of consumer involvement in a research proposal are important for project funding decisions. They recognized a need for flexibility when assessing consumer involvement in different contexts. We suggest that funders should continue to work to clarify what they consider to be the parameters of acceptability in terms of consumer involvement and ensure that 'flexible' criteria are fairly applied. Researchers should be aware of particular funders' views when applying for project funding.
本文报告了一项邮寄问卷调查的结果，以及对英国健康相关研究资助者的深入访谈，该调查探讨了他们是否、为何以及如何促进消费者参与研究项目。许多英国健康相关研究的资助者正在采取促进消费者参与研究项目的政策。电话访谈显示，他们这样做有几个原因，而且在鼓励和支持研究人员让消费者参与的方式上各不相同。对一些人来说，研究提案中消费者参与的描述对项目资金决策很重要。他们认识到在评估不同背景下的消费者参与时需要灵活性。我们建议资助者应继续努力明确他们认为在消费者参与方面可接受的参数，并确保公平应用“灵活”标准。研究人员在申请项目资金时应了解特定资助者的观点。
