Mitchell Terry Leigh, Baker Emerance
Native American Cancer Research, Pine, CO 80470-7830, USA.
J Cancer Educ. 2005 Spring;20(1 Suppl):41-6. doi: 10.1207/s15430154jce2001s_10.
The Aboriginal Women's Cancer Care Project used a participatory research model guided by an Aboriginal advisory group.
The researchers attempted to conduct cancer research with 5 culturally and geographically different communities in North America.
We discuss the challenges of conducting ethical research in keeping with the emergent research principles of community ownership and control of the research process and products.
Although there are many perils for researchers and communities in conducting participatory research, clearer practice guidelines will ensure that research in Aboriginal communities will increasingly prioritize community- versus career-building outcomes.
原住民妇女癌症护理项目采用了由原住民咨询小组指导的参与式研究模式。
研究人员试图在北美5个文化和地理上不同的社区开展癌症研究。
我们讨论了在遵循社区对研究过程和成果拥有所有权和控制权这一新兴研究原则的情况下进行伦理研究的挑战。
尽管参与式研究对研究人员和社区存在诸多风险,但更明确的实践指南将确保原住民社区的研究越来越优先考虑社区建设而非职业发展成果。