Lisa Mikesell is with the Communication Department, School of Communication and Information, Rutgers University, New Brunswick, NJ. Elizabeth Bromley is with the Semel Institute Center for Health Services and Society, Department of Psychiatry and Biobehavioral Sciences, University of California, Los Angeles, and the Greater Los Angeles VA Healthcare System. Dmitry Khodyakov is with the RAND Corporation, Santa Monica, CA.
Am J Public Health. 2013 Dec;103(12):e7-e14. doi: 10.2105/AJPH.2013.301605. Epub 2013 Oct 17.
Health research has relied on ethical principles, such as those of the Belmont Report, to protect the rights and well-being of research participants. Community-based participatory research (CBPR), however, must also consider the rights and well-being of communities. This requires additional ethical considerations that have been extensively discussed but not synthesized in the CBPR literature. We conducted a comprehensive thematic literature review and summarized empirically grounded discussions of ethics in CBPR, with a focus on the value of the Belmont principles in CBPR, additional essential components of ethical CBPR, the ethical challenges CBPR practitioners face, and strategies to ensure that CBPR meets ethical standards. Our study provides a foundation for developing a working definition and a conceptual model of ethical CBPR.
健康研究一直依赖于伦理原则，如贝尔蒙报告中的原则，以保护研究参与者的权利和福祉。然而，基于社区的参与式研究（CBPR）还必须考虑社区的权利和福祉。这需要额外的伦理考虑因素，这些因素已经在 CBPR 文献中进行了广泛讨论但尚未综合。我们进行了全面的主题文献综述，并总结了 CBPR 中伦理问题的实证讨论，重点是贝尔蒙原则在 CBPR 中的价值、伦理 CBPR 的其他基本组成部分、CBPR 从业者面临的伦理挑战以及确保 CBPR 符合伦理标准的策略。我们的研究为制定伦理 CBPR 的工作定义和概念模型提供了基础。
