Catlin Anita
Sonoma State University, Rohnert Park, CA 94928, USA.
J Perinat Neonatal Nurs. 2005 Apr-Jun;19(2):169-76. doi: 10.1097/00005237-200504000-00014.
The concept of advance directives is well-known in the care of adults as a mechanism for choosing in advance the extent of medical interventions desired in clinical situations, particularly life-extending interventions such as ventilation support and drugs to maintain cardiopulmonary status. Infants born extremely prematurely often require life-supporting measures for which their parents or guardians report feeling unprepared to make decisions about. Current prenatal care does not include an educational component that teaches women about the length of gestation needed for a healthy viability, survivorship, and outcome without major impairment. Women who go into preterm labor are asked to make immediate decisions during times of crisis without any formal education base for this decision making. Feminist ethics (the philosophical stance that articulates that women's moral experience is worthy of respect and disallows women's subordination) (Becker LB, Becker CB, eds. Feminist ethics. In: Encyclopedia of Ethics. New York: Routledge Press; 2001) requires that healthcare decisions be based on education, context, and particular situations. The purpose of this article is to examine the current content of typical prenatal care and education and to suggest an additional educational component to prenatal care-education of women about infant viability and the planning of future decisions if a nonviable or critically ill newborn is delivered. A prenatal discussion and parental/family directive is suggested.
预立医疗指示的概念在成人护理中广为人知,它是一种预先选择在临床情况下所需医疗干预程度的机制,特别是诸如通气支持和维持心肺功能的药物等延长生命的干预措施。极早产婴儿通常需要生命支持措施,但其父母或监护人表示对做出相关决策毫无准备。当前的产前护理并不包括一个教育部分,教导女性关于实现健康存活、生存及无重大损害结局所需的孕周时长。进入早产的女性在危机时刻被要求在没有任何正式教育基础的情况下立即做出决定。女性主义伦理学(一种哲学立场,阐明女性的道德经验值得尊重且不允许女性处于从属地位)(贝克尔·L·B、贝克尔·C·B 编。《女性主义伦理学》。载于《伦理学百科全书》。纽约:劳特利奇出版社;2001 年)要求医疗决策应基于教育、背景和具体情况。本文的目的是审视典型产前护理和教育的当前内容,并建议在产前护理教育中增加一个内容,即教导女性关于婴儿的生存能力以及如果分娩出一个无法存活或危重新生儿如何规划未来决策。建议进行一次产前讨论并制定父母/家庭指示。