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新生儿安乐死是无法支持的:《格罗宁根协议》应该被摒弃。

Neonatal euthanasia is unsupportable: the Groningen protocol should be abandoned.

作者信息

Kon Alexander A

机构信息

University of California, Davis, 2516 Stockton Blvd, Sacramento, CA 95817, USA.

出版信息

Theor Med Bioeth. 2007;28(5):453-63. doi: 10.1007/s11017-007-9047-8.

DOI:10.1007/s11017-007-9047-8
PMID:17985108
Abstract

The growing support for voluntary active euthanasia (VAE) is evident in the recently approved Dutch Law on Termination of Life on Request. Indeed, the debate over legalized VAE has increased in European countries, the United States, and many other nations over the last several years. The proponents of VAE argue that when a patient judges that the burdens of living outweigh the benefits, euthanasia can be justified. If some adults suffer to such an extent that VAE is justified, then one may conclude that some children suffer to this extent as well. In an attempt to alleviate the suffering of extremely ill neonates, the University Medical Center Groningen developed a protocol for neonatal euthanasia. In this article, I first present the ethical justifications for VAE and discuss how these arguments relate to euthanizing ill neonates. I then argue that, even if one accepts the justification for VAE in adults, neonatal euthanasia cannot be supported, primarily because physicians and parents can never accurately assess the suffering of children. I argue that without the testament of the patient herself as to the nature and magnitude of her suffering, physicians can never accurately weigh the benefits and burdens of a child's life, and therefore any such system would condemn to death some children whose suffering is not unbearable. I conclude that because the primary duty of physicians is to never harm their patients, neonatal euthanasia cannot be supported.

摘要

对自愿主动安乐死(VAE)日益增长的支持在最近获批的荷兰《根据请求终止生命法》中显而易见。事实上,在过去几年里,关于VAE合法化的辩论在欧洲国家、美国以及许多其他国家愈演愈烈。VAE的支持者认为,当患者判断生存的负担超过益处时,安乐死是合理的。如果一些成年人遭受的痛苦程度使得VAE合理,那么人们可能会得出结论,一些儿童也遭受着同样程度的痛苦。为了减轻身患重病的新生儿的痛苦,格罗宁根大学医学中心制定了一项新生儿安乐死方案。在本文中,我首先阐述VAE的伦理依据,并讨论这些论据与对患病新生儿实施安乐死之间的关系。然后我认为,即使有人接受成人VAE的依据,新生儿安乐死也无法得到支持,主要是因为医生和家长永远无法准确评估儿童的痛苦。我认为,没有患者本人关于其痛苦的性质和程度的证明,医生永远无法准确权衡儿童生命的益处和负担,因此任何这样的体系都会将一些痛苦并非无法忍受的儿童判处死刑。我的结论是,由于医生的首要职责是永不伤害患者,所以新生儿安乐死无法得到支持。

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引用本文的文献

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Dutch Protocols for Deliberately Ending the Life of Newborns: A Defence.荷兰关于故意结束新生儿生命的协议:一种辩护。
J Bioeth Inq. 2017 Jun;14(2):251-259. doi: 10.1007/s11673-017-9772-2. Epub 2017 Feb 20.
2
Involuntary euthanasia of severely ill newborns: is the Groningen Protocol really dangerous?严重患病新生儿的非自愿安乐死:格罗宁根方案真的危险吗?
Hippokratia. 2014 Jul-Sep;18(3):193-203.
3
Attitudes among the general Austrian population towards neonatal euthanasia: a survey.奥地利普通民众对新生儿安乐死的态度:一项调查

本文引用的文献

1
Self-perceived health-related quality of life of former extremely low birth weight infants at young adulthood.年轻成年期极早早产儿自我感知的健康相关生活质量
Pediatrics. 2006 Sep;118(3):1140-8. doi: 10.1542/peds.2006-0119.
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Do German general practitioners support euthanasia? Results of a nation-wide questionnaire survey.德国全科医生支持安乐死吗?一项全国性问卷调查的结果。
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Predictors of patient treatment preferences and spouse substituted judgments: the case of dialysis continuation.
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The Groningen protocol--euthanasia in severely ill newborns.格罗宁根方案——重症新生儿安乐死
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[Deliberate termination of life in newborns in The Netherlands; review of all 22 reported cases between 1997 and 2004].[荷兰新生儿的蓄意终止生命行为;对1997年至2004年间报告的所有22例病例的回顾]
Ned Tijdschr Geneeskd. 2005 Jan 22;149(4):183-8.
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Professional organizations' position statements on physician-assisted suicide: a case for studied neutrality.专业组织关于医生协助自杀的立场声明:主张审慎中立
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