Pace Wilson D, Staton Elizabeth W
Department of Family Medicine, University of Colorado Health Sciences Center, Denver, Colorado, USA.
Ann Fam Med. 2005 May-Jun;3 Suppl 1(Suppl 1):S21-9. doi: 10.1370/afm.270.
We wanted to describe the potential benefits and problems associated with selected electronic methods of collecting data within practice-based research networks (PBRNs).
We considered a literature review, discussions with PBRN researchers, industry information, and personal experience. This article presents examples of selected PBRNs' use of electronic data collection.
Collecting research data in the geographically dispersed PBRN environment requires considerable coordination to ensure completeness, accuracy, and timely transmission of the data, as well as a limited burden on the participants. Electronic data collection, particularly at the point of care, offers some potential solutions. Electronic systems allow use of transparent decision algorithms and improved data entry and data integrity. These systems may improve data transfer to the central office as well as tracking systems for monitoring study progress. PBRNs have available to them a wide variety of electronic data collection options, including notebook computers, tablet PCs, personal digital assistants (PDAs), and browser-based systems that operate independent of or over the Internet. Tablet PCs appear particularly advantageous for direct patient data collection in an office environment. PDAs work well for collecting defined data elements at the point of care. Internet-based systems work well for data collection that can be completed after the patient visit, as most primary care offices do not support Internet connectivity in examination rooms.
When planning to collect data electronically, it is important to match the electronic data collection method to the study design. Focusing an inappropriate electronic data collection method onto users can interfere with accurate data gathering and may also anger PBRN members.
我们想要描述与实践研究网络（PBRNs）中选定的电子数据收集方法相关的潜在益处和问题。
我们考虑了文献综述、与PBRN研究人员的讨论、行业信息以及个人经验。本文展示了选定的PBRNs使用电子数据收集的示例。
在地理上分散的PBRN环境中收集研究数据需要大量协调工作，以确保数据的完整性、准确性和及时传输，同时要尽量减轻参与者的负担。电子数据收集，尤其是在护理点进行的收集，提供了一些潜在的解决方案。电子系统允许使用透明的决策算法，并改善数据录入和数据完整性。这些系统可能会改善向中心办公室的数据传输以及用于监测研究进展的跟踪系统。PBRNs有多种电子数据收集选项可供选择，包括笔记本电脑、平板电脑、个人数字助理（PDA）以及独立于互联网或通过互联网运行的基于浏览器的系统。平板电脑在办公室环境中直接收集患者数据方面似乎特别有优势。PDA在护理点收集特定数据元素方面效果良好。基于互联网的系统在患者就诊后可以完成的数据收集方面效果良好，因为大多数初级保健办公室在检查室不支持互联网连接。
在计划以电子方式收集数据时，将电子数据收集方法与研究设计相匹配非常重要。将不适当的电子数据收集方法强加给用户可能会干扰准确的数据收集，也可能会激怒PBRN成员。
