Morris C, Kurinczuk J J, Fitzpatrick R
National Perinatal Epidemiology Unit, Department of Public Health, University of Oxford, Oxford, UK.
Child Care Health Dev. 2005 Jul;31(4):397-407. doi: 10.1111/j.1365-2214.2005.00519.x.
There is a need to measure children's 'activity performance and participation' as defined in the World Health Organization's International Classification of Functioning, Disability and Health for Children and Youth (WHO ICF). The aim of this review is to identify instruments that are suitable for use in postal surveys with families of children with cerebral palsy.
We conducted a structured review of instruments that use child or family self-assessment of 'activity performance and participation'. The review involved a systematic search for instruments using multiple published sources. Appraisal of the instruments used the predefined criteria of appropriateness, validity, reliability, responsiveness, precision, interpretability, acceptability and feasibility.
There are relatively few child or family assessed instruments appropriate for measuring children's activities and participation. Seven instruments were identified that could potentially be administered by mail. The Assessment of Life Habits for Children (LIFE-H) was the most appropriate instrument as assessed by its content but the reliability of child or family self-assessment is not known. If the LIFE-H were shown to be a reliable self-report measure then the LIFE-H would be the recommended choice. Currently, the Activities Scale for Kids and the condition-specific Lifestyle Assessment Questionnaire for cerebral palsy (LAQ-CP) provide the broadest description of what and how frequently children with cerebral palsy perform a range of activities and thereby indicate participation. The LAQ-CP also provides additional contextual information on the impact of any disability on the participation of the family unit.
There remains much scope for developing valid and reliable self-assessed measures corresponding to the WHO ICF dimensions of activities and participation.
有必要按照世界卫生组织《儿童和青少年功能、残疾与健康国际分类》（WHO ICF）中所定义的那样，对儿童的“活动表现和参与”进行测量。本综述的目的是确定适用于对脑瘫患儿家庭进行邮寄调查的工具。
我们对使用儿童或家庭自我评估“活动表现和参与”的工具进行了结构化综述。该综述涉及使用多个已发表来源对工具进行系统检索。对工具的评估采用了预先定义的适用性、有效性、可靠性、反应性、精确性、可解释性、可接受性和可行性标准。
相对而言，适合测量儿童活动和参与情况的由儿童或家庭评估的工具较少。确定了七种可能可以通过邮寄方式进行施测的工具。儿童生活习惯评估量表（LIFE - H）从内容方面评估是最合适的工具，但儿童或家庭自我评估的可靠性尚不清楚。如果LIFE - H被证明是一种可靠的自我报告测量工具，那么它将是推荐的选择。目前，儿童活动量表和针对脑瘫的特定病情生活方式评估问卷（LAQ - CP）对脑瘫患儿进行一系列活动的内容和频率提供了最广泛的描述，从而表明了参与情况。LAQ - CP还提供了关于任何残疾对家庭单位参与影响的额外背景信息。
在开发与WHO ICF活动和参与维度相对应的有效且可靠的自我评估测量工具方面，仍有很大的空间。
