Phaladze Nthabiseng A, Human Sarie, Dlamini Sibusiso B, Hulela Elsie B, Hadebe Innocent Mahlubi, Sukati Nonhlanhla A, Makoae Lucy Nthabiseng, Seboni Naomi Mmapelo, Moleko Mary, Holzemer William L
University of Botswana, Department of Nursing Education, Gaborone, Botswana.
J Nurs Scholarsh. 2005;37(2):120-6. doi: 10.1111/j.1547-5069.2005.00023.x.
PURPOSE: To increase understanding of the meaning of quality of life for people living with HIV/AIDS in four countries in sub-Saharan Africa: Botswana, Lesotho, South Africa, and Swaziland. METHODS: Using a cross-sectional design and convenience sample, we administered a survey and collected data on demographic characteristics, measures of severity of illness, and perceptions of quality of life. The purposefully selected sample (N=743) consisted of community-based people living with HIV/AIDS in 2002. Based on the Wilson and Cleary framework for organizing variables related to quality of life, a hierarchical multiple regression was conducted with quality of life as the dependent variable. RESULTS: The sample of 743 persons was 61.2% female with a mean age of 34 years. Approximately 62 % of the sample reported having received an AIDS diagnosis. Ten predictor variables explained 53.2 % of the variance in life satisfaction. Those participants with higher life satisfaction scores were less educated, had worries about disclosure and finances, did not have an AIDS diagnosis or other comorbid conditions, had lower symptom intensity, had greater functioning, and had fewer health worries. None of these participants was taking antiretroviral medications at the time of this study. CONCLUSIONS: Several dimensions of the Wilson and Cleary model of quality of life were significantly related to life satisfaction for people living with HIV/AIDS in sub-Saharan Africa. Quality of life for this sample was primarily defined as overall functional ability and control over symptom intensity. These findings are similar to studies in developed countries that have shown the significant relationships among functional abilities, symptom control, and perceived quality of life. As antiretroviral medications become more available in these areas, community members and care providers can help clients realize the possibility of living well with HIV/AIDS, and can work with clients to improve functional ability and control symptom intensity to make living well a reality.
目的:增进对撒哈拉以南非洲四个国家(博茨瓦纳、莱索托、南非和斯威士兰)感染艾滋病毒/艾滋病者生活质量含义的理解。 方法:采用横断面设计和便利抽样,我们进行了一项调查,并收集了有关人口统计学特征、疾病严重程度测量以及生活质量认知的数据。2002年,特意选取的样本(N = 743)由社区内感染艾滋病毒/艾滋病者组成。基于威尔逊和克利里用于组织与生活质量相关变量的框架,以生活质量为因变量进行了分层多元回归分析。 结果:743人的样本中61.2%为女性,平均年龄34岁。约62%的样本报告已被诊断为艾滋病。10个预测变量解释了生活满意度方差的53.2%。生活满意度得分较高的参与者受教育程度较低,担心信息披露和财务问题,未被诊断为艾滋病或患有其他合并症,症状强度较低,功能较好,且健康方面的担忧较少。在本研究进行时,这些参与者均未服用抗逆转录病毒药物。 结论:威尔逊和克利里生活质量模型的几个维度与撒哈拉以南非洲感染艾滋病毒/艾滋病者的生活满意度显著相关。该样本的生活质量主要被定义为整体功能能力和对症状强度的控制。这些发现与发达国家的研究相似,这些研究表明功能能力、症状控制和感知生活质量之间存在显著关系。随着抗逆转录病毒药物在这些地区越来越容易获得,社区成员和护理提供者可以帮助患者认识到与艾滋病毒/艾滋病共存并过上美好生活的可能性,并与患者合作提高功能能力和控制症状强度,以使美好生活成为现实。
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