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绝症患者的心声:探寻安乐死愿望的意义

Voices of the terminally ill: uncovering the meaning of desire for euthanasia.

作者信息

Mak Yvonne Yi Wood, Elwyn Glyn

机构信息

Bradbury Hospice, A Kung Kok Shan Road, Shatin, New Territories, Hong Kong.

出版信息

Palliat Med. 2005 Jun;19(4):343-50. doi: 10.1191/0269216305pm1019oa.

Abstract

This study aimed to better understand the meaning of desire for euthanasia. An hermeneutic approach was undertaken using a purposively selected sample of advanced cancer patients who desired euthanasia while receiving palliative care. Unstructured interviews were conducted with six participants, which were audiotaped, transcribed and analysed. This approach allowed in-depth exploration and interpretation of the patients' lived experience. The findings illustrated a timeline from previous wellness to approaching death with five major themes: (1) reality, (2) perception, (3) anticipation, (4) desire and (5) holding environment. The desire for euthanasia is not confined to physical or psychosocial concerns relating to advanced cancer, but incorporates hidden existential yearnings for connectedness, care and respect, understood within the context of the patients' lived experience. Euthanasia requests cannot be taken at face value but require in-depth exploration of their covert meaning, in order to ensure that the patients' needs are being addressed adequately.

摘要

本研究旨在更好地理解安乐死愿望的意义。采用诠释学方法,对在接受姑息治疗时希望安乐死的晚期癌症患者进行了有目的的抽样。对六名参与者进行了非结构化访谈,并进行了录音、转录和分析。这种方法允许对患者的生活经历进行深入探索和解释。研究结果展示了从先前的健康状态到临近死亡的时间线,包括五个主要主题:(1)现实,(2)认知,(3)预期,(4)愿望和(5)支持环境。对安乐死的愿望并不局限于与晚期癌症相关的身体或心理社会问题,而是包含了在患者生活经历背景下对联系、关怀和尊重的隐藏的存在主义渴望。不能仅凭表面价值看待安乐死请求,而需要深入探究其隐含意义,以确保充分满足患者的需求。

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