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痛苦与安乐死:对临终癌症患者观点的定性研究。

Suffering and euthanasia: a qualitative study of dying cancer patients' perspectives.

机构信息

Department of Oncology-Pathology, Karolinska Institutet, Stockholm, Sweden.

出版信息

Support Care Cancer. 2012 May;20(5):1065-71. doi: 10.1007/s00520-011-1186-9. Epub 2011 May 14.

DOI:10.1007/s00520-011-1186-9
PMID:21573739
Abstract

PURPOSE

Although intolerable suffering is a core concept used to justify euthanasia, little is known about dying cancer patients' own interpretations and conclusions of suffering in relation to euthanasia.

METHODS

Sixty-six patients with cancer in a palliative phase were selected through maximum-variation sampling, and in-depth interviews were conducted on suffering and euthanasia. The interviews were analyzed using qualitative content analysis with no predetermined categories.

RESULTS

The analysis demonstrated patients' different perspectives on suffering in connection to their attitude to euthanasia. Those advocating euthanasia, though not for themselves at the time of the study, did so due to (1) perceptions of suffering as meaningless, (2) anticipatory fears of losses and multi-dimensional suffering, or (3) doubts over the possibility of receiving help to alleviate suffering. Those opposing euthanasia did so due to (1) perceptions of life, despite suffering, as being meaningful, (2) trust in bodily or psychological adaptation to reduce suffering, a phenomenon personally experienced by informants, and (3) by placing trust in the provision of help and support by healthcare services to reduce future suffering.

CONCLUSIONS

Dying cancer patients draw varying conclusions from suffering: suffering can, but does not necessarily, lead to advocations of euthanasia. Patients experiencing meaning and trust, and who find strategies to handle suffering, oppose euthanasia. In contrast, patients with anticipatory fears of multi-dimensional meaningless suffering and with lack of belief in the continuing availability of help, advocate euthanasia. This indicates a need for healthcare staff to address issues of trust, meaning, and anticipatory fears.

摘要

目的

尽管无法忍受的痛苦是用于 justifies 安乐死的核心概念,但对于临终癌症患者自身对痛苦的解释和结论与安乐死的关系,人们知之甚少。

方法

通过最大变异抽样选择了 66 名处于姑息阶段的癌症患者,并对痛苦和安乐死进行了深入访谈。使用无预设类别的定性内容分析对访谈进行了分析。

结果

分析表明,患者对痛苦的看法不同,与他们对安乐死的态度有关。那些支持安乐死的患者,尽管当时并不支持自己接受安乐死,但他们这样做的原因是:(1)认为痛苦毫无意义,(2)对损失和多维痛苦的预期恐惧,或(3)对减轻痛苦的可能性的怀疑。那些反对安乐死的患者则是因为:(1)尽管痛苦,他们仍认为生命有意义,(2)相信身体或心理适应可以减轻痛苦,受访者个人经历过这种现象,以及(3)相信医疗保健服务可以提供帮助和支持来减轻未来的痛苦。

结论

临终癌症患者从痛苦中得出不同的结论:痛苦可能会导致支持安乐死,但并非必然。经历过意义和信任的患者,以及找到应对痛苦的策略的患者,反对安乐死。相比之下,那些对多维无意义痛苦有预期恐惧且对持续获得帮助缺乏信心的患者,则支持安乐死。这表明医疗保健人员需要解决信任、意义和预期恐惧等问题。

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本文引用的文献

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Maintaining the will to live of patients with advanced cancer.维持晚期癌症患者的生存意愿。
Cancer J. 2010 Sep-Oct;16(5):524-31. doi: 10.1097/PPO.0b013e3181f45b90.
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Judgment of unbearable suffering and willingness to grant a euthanasia request by Dutch general practitioners.荷兰全科医生对无法忍受的痛苦的判断和愿意批准安乐死请求。
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Clinical essentialising: a qualitative study of doctors' medical and moral practice.临床本质化:对医生医疗与道德实践的定性研究
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A good death from the perspective of palliative cancer patients.从姑息治疗癌症患者的角度看善终。
Support Care Cancer. 2017 Mar;25(3):933-939. doi: 10.1007/s00520-016-3483-9. Epub 2016 Nov 12.
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Euthanasia requests, procedures and outcomes for 100 Belgian patients suffering from psychiatric disorders: a retrospective, descriptive study.100例比利时精神疾病患者的安乐死请求、程序及结果:一项回顾性描述性研究
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BMJ. 2009 Nov 16;339:b4362. doi: 10.1136/bmj.b4362.
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Legal euthanasia in Belgium: characteristics of all reported euthanasia cases.比利时合法安乐死:所有报告安乐死案例的特征。
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Reporting of euthanasia and physician-assisted suicide in the Netherlands: descriptive study.荷兰安乐死及医生协助自杀的报告:描述性研究
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Unbearable suffering of patients with a request for euthanasia or physician-assisted suicide: an integrative review.患者不堪忍受痛苦请求安乐死或医生协助自杀:综合述评。
Psychooncology. 2010 Apr;19(4):339-52. doi: 10.1002/pon.1612.
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The landscape of distress in the terminally ill.晚期绝症患者的痛苦写照。
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Nursing and euthanasia: a review of argument-based ethics literature.护理与安乐死:基于论证的伦理文献综述
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