简短报告：一种用于生长障碍青少年的生活质量工具。

Brief report: a quality of life instrument for adolescents with growth disorders.

作者信息

Cramer Joyce A, Claude Simeoni Marie, Auquier Pascal, Robitail Stéphane, Brasseur Pascale, Beresniak Ariel

机构信息

Department of Psychiatry, Yale University School of Medicine, New Haven, CT, USA.

出版信息

J Adolesc. 2005 Aug;28(4):595-600. doi: 10.1016/j.adolescence.2004.11.003.

DOI:10.1016/j.adolescence.2004.11.003

PMID:16022892

Abstract

This study assessed the psychometric properties of a recently developed health-related quality of life (HRQOL) instrument (Vécu et Santé Perçue de l'Adolescent -Malade, VSP-AM) in 172 adolescents receiving growth hormone. The VSP-AM was cross-culturally adapted into English and tested for internal consistency (alpha=0.78-0.89 subscales, 0.74 Summary Score), construct and criterion validity, and responsiveness. Correlations with other scales demonstrated convergent validity. Adolescents who reported HRQOL as high or low had significantly different scores (all p<0.001). Adolescents receiving growth hormone therapy differed significantly from adolescents with medical, surgical or psychiatric disorders. The VSP-AM shows reliability and validity for HRQOL measurement in adolescents with growth disorders.

摘要

本研究评估了一种最近开发的健康相关生活质量（HRQOL）工具（青少年患者的生活与健康感知，VSP-AM）在172名接受生长激素治疗的青少年中的心理测量特性。VSP-AM经过跨文化改编成英文，并测试了内部一致性（各分量表α=0.78-0.89，总得分α=0.74）、结构效度、效标效度和反应度。与其他量表的相关性证明了收敛效度。报告HRQOL高或低的青少年得分有显著差异（所有p<0.001）。接受生长激素治疗的青少年与患有内科、外科或精神疾病的青少年有显著差异。VSP-AM在评估患有生长障碍的青少年的HRQOL方面显示出可靠性和有效性。