Engelman Kimberly K, Perpich Denise L, Peterson Shelly L, Hall Matthew A, Ellerbeck Edward F, Stanton Annette L
Department of Preventive Medicine and Public Health, University of Kansas Medical Center, 3901 Rainbow Boulevard, Kansas City, KS 66160, USA.
J Health Commun. 2005 Apr-May;10(3):199-208. doi: 10.1080/10810730590934217.
Although cancer presents obstacles for all who experience it, persons in rural communities must negotiate additional challenges. This study determined the cancer information (CI) needs and the CI-seeking behavior and preferences among rural-dwelling persons. Patients (N = 801) = 50 years of age seen in 36 rural Kansas primary care practices completed a Cancer Care Information Needs Survey (CCINS); physicians completed a cancer resource knowledge and preference survey. Of the 801 patients, 184 (23%) reported a CI need. Of these 184 patients, 45% reported either not discussing cancer or having insufficient discussion time with their physicians; 44% needed more information after consulting their physician. Patients more likely to report a CI need were young, female, Internet users, persons with a prior cancer diagnosis, and persons seeing male physicians or physicians in group/multispecialty practices. Patients and physicians were unfamiliar with services provided by national cancer organizations. Physicians are a primary CI source; however, patients who need CI report insufficient cancer discussion time with their physician and need more CI after consulting their physician. Promoting access to national CI sources could bridge the CI needs gap that exists in rural areas currently.
尽管癌症给所有患者带来了障碍,但农村社区的居民还必须应对额外的挑战。本研究确定了农村居民的癌症信息需求、寻求癌症信息的行为及偏好。堪萨斯州36家农村初级医疗诊所中50岁及以上的患者(N = 801)完成了癌症护理信息需求调查(CCINS);医生完成了癌症资源知识及偏好调查。在801名患者中,184名(23%)表示有癌症信息需求。在这184名患者中,45%表示要么未与医生讨论过癌症,要么与医生讨论的时间不足;44%在咨询医生后还需要更多信息。更有可能表示有癌症信息需求的患者包括年轻人、女性、互联网用户、曾被诊断患有癌症的人,以及看男医生或在团体/多专科诊所看病的人。患者和医生对国家癌症组织提供的服务并不熟悉。医生是主要的癌症信息来源;然而,需要癌症信息的患者表示与医生讨论癌症的时间不足,且在咨询医生后还需要更多癌症信息。促进获取国家癌症信息来源可以弥合目前农村地区存在的癌症信息需求差距。