Dovey-Pearce Gail, Hurrell Ruth, May Carl, Walker Caron, Doherty Yvonne
Northumbria Healthcare NHS Trust, UK.
Health Soc Care Community. 2005 Sep;13(5):409-19. doi: 10.1111/j.1365-2524.2005.00577.x.
Managing the multiple demands of a chronic condition whilst negotiating the developmental tasks of adolescence and young adulthood is a process that is neither well described nor understood, particularly in relation to providing developmentally appropriate health care for young people. The importance of this issue is starting to be reflected within the literature, and although research into models of service delivery is emerging, a lack of user involvement in service development is apparent. This qualitative, user involvement study aimed to describe and understand the considered opinions of 19 young adults with diabetes who were receiving secondary care services about the provision of diabetes services for young people. The findings, gathered using semistructured interview and focus group methods, have potentially wide-reaching implications across primary and secondary health care, and across agencies providing services to children and young people, in terms of facilitating a person's transition through adolescence and into young adult life. Participants suggested key issues to address when developing services for young people, including staff consistency, civility, clinic structures which help a person navigate the health care system, provision of age-specific information, and support in relation to a range of health, emotional, social and developmental needs. Health care professionals can help young people to meet the expectations upon them as autonomous service users by modelling appropriate relationships, helping them to acquire skills and knowledge, and overcome barriers to them becoming active participants in their health care and achieving social participation in a fuller sense. It is somewhat arbitrary to delineate between adolescence and young adulthood in terms of age alone, but in this paper, 'adolescence' refers to the period between 11 and 15 years of age, and 'young adulthood' between 16 and 25 years of age. The phrase 'young people' will also be used to refer to people between 11 and 25 years.
在应对慢性病的多种需求的同时，还要应对青少年和青年期的发展任务，这一过程既没有得到很好的描述，也没有被充分理解，尤其是在为年轻人提供适合其发展阶段的医疗保健方面。这个问题的重要性开始在文献中得到体现，尽管关于服务提供模式的研究正在兴起，但明显缺乏用户对服务开发的参与。这项定性的、用户参与的研究旨在描述和理解19名接受二级护理服务的糖尿病青年成年人对为年轻人提供糖尿病服务的深思熟虑的意见。通过半结构化访谈和焦点小组方法收集的研究结果，在促进一个人从青少年过渡到青年期方面，对初级和二级医疗保健以及为儿童和年轻人提供服务的各个机构都可能产生广泛影响。参与者提出了为年轻人开发服务时需要解决的关键问题，包括工作人员的连贯性、礼貌、有助于人们在医疗保健系统中导航的诊所结构、提供适合年龄的信息，以及在一系列健康、情感、社会和发展需求方面提供支持。医疗保健专业人员可以通过树立恰当的关系模式、帮助年轻人获得技能和知识，以及克服他们成为积极的医疗保健参与者并实现更充分社会参与的障碍，来帮助年轻人满足他们作为自主服务使用者的期望。仅从年龄来划分青少年和青年期有点随意，但在本文中，“青少年”指的是11至15岁的时期，“青年期”指的是16至25岁的时期。“年轻人”一词也将用于指代11至25岁的人群。
