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引言:患者组织运动与患者身份的新蜕变。

Introduction: Patient organization movements and new metamorphoses in patienthood.

作者信息

Landzelius Kyra

出版信息

Soc Sci Med. 2006 Feb;62(3):529-37. doi: 10.1016/j.socscimed.2005.06.023. Epub 2005 Jul 27.

DOI:10.1016/j.socscimed.2005.06.023
PMID:16054282
Abstract

In this introduction, we examine health activism as one expression of an emergent 'politics of vitality' or flurry of activity around health matters that includes: advances in technoscientific medicine, healthcare restructurings, and a re-thinking of science-society contracts. In querying politicized mobilizations around 'health matters and the mattering of health,' we provocatively entitle our discussion 'patient organization movements'. This marks an invitation to interrogate (in reverse order) each term along the way, pausing in our concluding discussion to turn our attentions to the patient. The figure of the patient is thematized as an historical inscription and a formidable dimension of personhood under modernity/late modernity. Moreover, we argue that conventional categorizations of the patient are undergoing accelerated processes of change at the present time. We characterize three transformational trends: moves to author and authorize patienthood, mutiny from patienthood, and mutations in the category of the patient. Such metamorphoses in patienthood represent both reflections and repercussions--at once consequences and catalysts--of the proposed politics of vitality. We explore the pluralization of the patient's persona via a closer look at the 11 empirical studies of health activism that comprise this collection.

摘要

在本引言中,我们将健康行动主义视为一种新兴的“活力政治”的表现形式,或者说是围绕健康问题展开的一系列活动,其中包括:技术科学医学的进步、医疗保健结构调整以及对科学与社会契约的重新思考。在探究围绕“健康问题与健康的重要性”的政治化动员时,我们颇具挑衅性地将讨论命名为“患者组织运动”。这意味着我们要依次对每个术语进行审视(顺序相反),并在最后的讨论中停下来,将注意力转向患者。患者这一形象被视为一种历史印记,以及现代性/晚期现代性背景下人格的一个重要维度。此外,我们认为目前患者的传统分类正在经历加速的变化过程。我们描述了三种变革趋势:走向赋予患者身份及授权、对患者身份的反抗以及患者类别中的变异。患者身份的这种蜕变既反映了又影响着——既是所提出的活力政治的后果又是其催化剂——所提出的活力政治。我们通过更深入地研究构成本文集的11项健康行动主义实证研究,来探讨患者角色的多元化。

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