Örebro University, Sweden; Lund University, Sweden.
Public Underst Sci. 2023 Feb;32(2):175-189. doi: 10.1177/09636625221107505. Epub 2022 Jul 28.
The article intervenes in discussions on lay knowledge production about health in the Internet era, through the case of a group of women claiming that their use of copper intrauterine devices has led to systemic side effects. Based on online group interviews and written essays, we examine how women embracing these knowledge claims navigate various sources of information, focusing on the role of scientificity in these epistemic negotiations. The women were found to be involved in an active, scientifically oriented process of knowledge formation, which we refer to as a . Meanwhile, due to a perceived lack of scientifically based expertise on their condition, the women reported having little choice but turn to resources with weaker scientific foothold. We argue that the tendency to portray these women's claims as unscientific simplifies the nature of lay knowledge production, potentially deepening divides between medical authorities and the public.
本文通过一群女性声称使用铜宫内节育器导致全身副作用的案例，介入了互联网时代关于大众健康知识生产的讨论。基于在线小组访谈和书面文章，我们考察了这些接受这些知识主张的女性如何在各种信息来源中进行选择，重点关注科学性在这些认识论协商中的作用。研究发现，女性参与了一个积极的、以科学为导向的知识形成过程，我们称之为“循证医学”。同时，由于她们认为自己的病情缺乏基于科学的专业知识，因此报告说几乎别无选择，只能转向科学依据较弱的资源。我们认为，将这些女性的主张描述为不科学的倾向简化了大众知识生产的本质，可能会加深医学权威和公众之间的分歧。
