Jennings Pamela D
Pediatric Care Unit, St. John Hospital, Detroit, MI, USA.
Pediatr Nurs. 2005 May-Jun;31(3):195-200.
We expect children to live to adulthood; however, children do die. Some die from diseases they are born with, others from accidents or illnesses. The devastating effects associated with the death of a child can be lessened by providing palliative, hospice, and bereavement care. At St. John Hospital (SJH) in Detroit, MI, the services that provide care for children chartered the Pediatric Palliative Care Committee. The committee brought together staff from the inpatient pediatric unit, cancer center, home care, and hospice care services within the St. John Health System. Utilizing established staff and services, this group began to provide care for children with potentially life limiting illnesses in a coordinated, multidisciplinary team approach. The positive outcomes of this approach include an overall increase in patient and family satisfaction with care, a decrease in the number of emergency room visits and inpatient hospital stays, and an increase in patient and family informed decision making and goal setting. Positive outcomes for the staff include support in caring for children with life limiting illnesses and an increase in satisfaction with the care they provide.
我们期望孩子们活到成年；然而，孩子们确实会死亡。一些孩子死于先天性疾病，另一些则死于意外事故或疾病。通过提供姑息治疗、临终关怀和丧亲护理，可以减轻与儿童死亡相关的毁灭性影响。在密歇根州底特律的圣约翰医院（SJH），为儿童提供护理的服务部门成立了儿科姑息治疗委员会。该委员会召集了圣约翰医疗系统内儿科住院部、癌症中心、家庭护理和临终关怀服务部门的工作人员。利用现有的人员和服务，这个团队开始以协调一致的多学科团队方式为患有潜在危及生命疾病的儿童提供护理。这种方法的积极成果包括患者和家属对护理的总体满意度提高、急诊室就诊次数和住院天数减少，以及患者和家属在知情决策和目标设定方面有所增加。对工作人员来说，积极成果包括在护理患有危及生命疾病的儿童方面得到支持，以及对他们提供的护理的满意度提高。
