Powaski Kristen M
Department of Pediatric Hematology and Oncology, The Children's Hospital at The Cleveland Clinic, 9500 Euclid Avenue, Desk S20, Cleveland, OH 44195, USA.
Child Adolesc Psychiatr Clin N Am. 2006 Jul;15(3):717-37. doi: 10.1016/j.chc.2006.03.001.
Caring for chronically ill children whose health is declining and thosechildren who are critically ill is stressful and can be overwhelming to bothhealthcare professionals and parents. Palliative care teams aim to providethe multidisciplinary and holistic support staff and families need. Families,nurses, and primary medical teams value the involvement of a pediatric pal-liative medicine team to improve the quality of living. The bedside nurse isa vital part of the support system and is ready and available to be presentwith the palliative care team to support families no matter what the circum-stances. Advocating for the patient; creating a culture of flexibility; antici-pating, identifying, and responding to the patient and family needs;fostering hope; and providing the support needed for the parents to makeinformed decisions, are keys to providing quality patient care. Nurses arein the position to positively influence each of these areas of patient care ina positive manner.
照顾健康状况日益恶化的慢性病患儿以及危重症患儿,对医护人员和家长来说都是压力巨大且可能不堪重负的。姑息治疗团队旨在提供多学科的全面支持,这是医护人员和家庭所需要的。家庭、护士和基层医疗团队重视儿科姑息医学团队的参与,以提高生活质量。床边护士是支持系统的重要组成部分,无论情况如何,都随时准备与姑息治疗团队一起为家庭提供支持。为患者代言;营造灵活的文化氛围;预测、识别并回应患者及家庭的需求;培养希望;以及为家长提供做出明智决策所需的支持,是提供优质患者护理的关键。护士有能力以积极的方式对患者护理的这些领域产生积极影响。