Enguidanos Susan, Yip Judy, Wilber Kathleen
Partners in Care Foundation, Andrus Gerontology Center, University of Southern California, Los Angeles, California 91502, USA.
J Am Geriatr Soc. 2005 Aug;53(8):1411-6. doi: 10.1111/j.1532-5415.2005.53410.x.
This is a retrospective study using secondary data to investigate variation in site of death by ethnicity and to determine how hospice enrollment affects site of death. Data for this study were obtained between 1996 and 2000 from linked Medi-Cal and Medicare claims from 18 California counties participating in a state legislated effort to improve chronic care services in California. Subjects examined in this study included 38,519 decedents aged 65 and older who died between 1997 and 2000 and were dually eligible the entire year immediately before death. Demographic variables were site of death, cause of death, hospice use, and care setting in the year before death. Results revealed that blacks and Latinos were significantly more likely than whites to die at home, although being black or Asian was negatively associated with hospice use. This variation did not change when hospice use was controlled. Thus, although minorities were more likely to die at home, they were less likely to receive hospice care. Because patients dying at home without hospice care report higher rates of pain than those who have hospice care, physicians must work to ensure that minority patients understand all end-of-life care options, including hospice, and how these care options can be delivered in a culturally competent manner.
这是一项回顾性研究,使用二手数据调查按种族划分的死亡地点差异,并确定临终关怀登记如何影响死亡地点。本研究的数据于1996年至2000年间从加利福尼亚州18个县的医疗补助和医疗保险关联索赔中获取,这些县参与了一项州立法努力,以改善加利福尼亚州的慢性病护理服务。本研究中检查的受试者包括38519名65岁及以上的死者,他们于1997年至2000年间死亡,并且在死亡前一整年都符合双重资格标准。人口统计学变量包括死亡地点、死因、临终关怀使用情况以及死亡前一年的护理环境。结果显示,黑人和拉丁裔比白人更有可能在家中死亡,尽管黑人或亚裔与临终关怀的使用呈负相关。在控制了临终关怀的使用后,这种差异没有改变。因此,尽管少数族裔更有可能在家中死亡,但他们接受临终关怀护理的可能性较小。由于没有接受临终关怀护理而在家中死亡的患者报告的疼痛发生率高于接受临终关怀护理的患者,医生必须努力确保少数族裔患者了解所有临终护理选择,包括临终关怀,以及如何以具有文化胜任力的方式提供这些护理选择。