Sidhu Ranita, Passmore Anne, Baker David
Haematology/Oncology Total Care Unit, Princess Margaret Hospital, Perth, Western Australia.
J Pediatr Oncol Nurs. 2005 Sep-Oct;22(5):276-87. doi: 10.1177/1043454205278480.
Although more is understood about childhood cancer's impact on the often forgotten siblings in the family, developing empirically tested interventions that support positive health outcomes is only just emerging. As family support is of key importance in sibling adjustment, further knowledge about their needs is crucial to the development of effective interventions. This investigation focused on examining parental perceptions regarding the concerns and issues for siblings of children with cancer and explored what support is helpful. Focus group methods were used to gather the data with probe questions developed from the literature and from clinical experience. Emergent topics generated were further analyzed using content analysis with 3 major topics identified: the universality of losses arising from the illness experience, behavioral challenges and adaptation, and parent-sibling communication. Parents also discussed helpful interventions. These are described and discussed in relation to the literature. The information obtained will contribute to developing interventions for siblings, specifically to produce a protocol for a therapeutic peer-support camp.
尽管人们对儿童癌症对家庭中常被遗忘的兄弟姐妹的影响有了更多了解,但开发经过实证检验且能支持积极健康结果的干预措施才刚刚起步。由于家庭支持在兄弟姐妹的适应过程中至关重要,进一步了解他们的需求对于开发有效的干预措施至关重要。这项调查聚焦于审视父母对癌症患儿兄弟姐妹所关心问题的看法,并探究何种支持是有帮助的。采用焦点小组方法收集数据,使用从文献和临床经验中得出的探测性问题。对产生的新出现主题运用内容分析法进一步分析,确定了3个主要主题:疾病经历导致的损失的普遍性、行为挑战与适应,以及父母与兄弟姐妹的沟通。父母们还讨论了有帮助的干预措施。这些措施将结合文献进行描述和讨论。所获得的信息将有助于为兄弟姐妹开发干预措施,特别是制定一个治疗性同伴支持营的方案。