Ballard Katherine L
Department of Oncology and Haematology, Birmingham Children's Hospital, Birmingham, England.
Pediatr Nurs. 2004 Sep-Oct;30(5):394-401.
This study elicited the views of parents of children with cancer on siblings' needs and on support offered. A questionnaire obtained views from parents in 86 families (159 well siblings, mean age 10.5 years). Parents felt that current support was inadequate. Parents were willing for siblings to be involved in most therapeutic interventions; however, practicalities presented an obstacle to allowing their child's attendance. Parents who believed that their well child was likely to have problems as a result of the diagnosis were more willing (p < 0.004) and more able (p < 0.01) to take their child to therapeutic interventions. The weekend interventions and leaflets developed as a result of this study are described.
本研究征集了癌症患儿家长对于其患病孩子兄弟姐妹的需求以及所提供支持的看法。一份问卷收集了来自86个家庭(159名健康兄弟姐妹,平均年龄10.5岁)家长的看法。家长们认为目前的支持不足。家长们愿意让兄弟姐妹参与大多数治疗性干预措施;然而,实际情况成为了孩子参与的障碍。那些认为自己健康的孩子可能因癌症诊断而出现问题的家长更愿意(p < 0.004)且更有能力(p < 0.01)带孩子去接受治疗性干预。文中描述了基于本研究开发的周末干预措施和宣传册。