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癌症和血液病患儿的兄弟姐妹未满足的心理社会需求早期识别项目共识:改良 Delphi 法。

Consensus on the items for early identification of unmet psychosocial needs of siblings of children with cancer and blood disease: A modified Delphi method.

机构信息

Nursing Science, Department of Integrated Health Sciences, Graduate School of Medicine, Nagoya University, Nagoya, Japan.

Department of Nursing, Nagoya University Hospital, Nagoya, Japan.

出版信息

Nurs Open. 2023 Oct;10(10):7025-7037. doi: 10.1002/nop2.1958. Epub 2023 Jul 28.

Abstract

AIM

To reach a consensus on question items for early identification of unmet psychosocial needs of school-aged siblings of children with cancer and blood disease.

DESIGN

Modified Delphi method.

METHODS

Twenty-three studies were reviewed to extract question items, which were classified into seven categories. A total of 39 question items were selected for this study. The selected question items were carefully considered using the modified Delphi method. The participants were 28 medical staff from a childhood cancer hub hospital and 20 sibling support group staff members. The first round consisted of a questionnaire (n = 48); the second, a focus group interview (n = 8) and the third, another questionnaire (n = 8). The first and third rounds used a 5-point Likert scale. This survey was conducted from July to October 2021.

RESULTS

A total of 38, 26, and 24 question items were included in the first, second, and third rounds respectively. A total of 24 question items were extracted using the modified Delphi method to identify siblings' unmet psychosocial needs: relationship with family members, 3; daily life issues, 4; stress, 6; emotions, 3; information, 3; relationships with medical staff, 1 and social and medical resources, 4. Seven categories and 24 question items were confirmed as items for identifying the unmet psychosocial needs of school-aged siblings of children with cancer and blood disease.

摘要

目的

就识别癌症和血液病患儿学龄期兄弟姐妹未满足的心理社会需求的问题项目达成共识。

设计

改良德尔菲法。

方法

回顾了 23 项研究以提取问题项目,并将其分为 7 类。共选择了 39 个问题项目进行研究。使用改良德尔菲法仔细考虑了选定的问题项目。参与者包括一家儿童癌症中心医院的 28 名医务人员和 20 名兄弟姐妹支持小组成员。第一轮是问卷调查(n=48);第二轮是焦点小组访谈(n=8),第三轮是另一个问卷调查(n=8)。第一轮和第三轮使用 5 分制李克特量表。这项调查于 2021 年 7 月至 10 月进行。

结果

第一轮、第二轮和第三轮分别纳入了 38、26 和 24 个问题项目。使用改良德尔菲法共提取了 24 个问题项目来识别兄弟姐妹的未满足的心理社会需求:与家庭成员的关系 3 个;日常生活问题 4 个;压力 6 个;情绪 3 个;信息 3 个;与医务人员的关系 1 个和社会医疗资源 4 个。7 个类别和 24 个问题项目被确定为识别癌症和血液病患儿学龄期兄弟姐妹未满足的心理社会需求的项目。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/291c/10495737/25ab181e4b80/NOP2-10-7025-g001.jpg

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Front Pediatr. 2022 May 30;10:927084. doi: 10.3389/fped.2022.927084. eCollection 2022.
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Science and health for all children with cancer.为所有癌症患儿提供科学和健康。
Science. 2019 Mar 15;363(6432):1182-1186. doi: 10.1126/science.aaw4892.
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The Impact of School Visits on Siblings of Children With Cancer.学校探访对癌症患儿兄弟姐妹的影响。
J Pediatr Oncol Nurs. 2018 Mar/Apr;35(2):110-117. doi: 10.1177/1043454217735897. Epub 2017 Nov 9.

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