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癌症患儿的社会支持和兄弟姐妹:范围综述。

Social support and siblings of children with cancer: A scoping review.

机构信息

Intermountain Primary Children's Hospital, Pediatric Critical Care Services, College of Nursing, University of Utah, Salt Lake City, Utah, USA.

Department of Psychology, St. Jude Children's Research Hospital, Memphis, Tennessee, USA.

出版信息

Psychooncology. 2021 Aug;30(8):1232-1245. doi: 10.1002/pon.5689. Epub 2021 Apr 13.

Abstract

OBJECTIVE

Social support is essential in healthy adjustment to life stressors. This scoping review examines how social support has been conceptualized, operationalized, and studied among siblings of children with cancer. Gaps in the current literature are identified, and future research directions are proposed.

METHODS

A rigorous systematic scoping review framework guided our process. Medline, Embase, CINAHL, PsycINFO, and Scopus were searched for literature regarding social support and siblings of children with cancer. After screening, 57 articles were identified (n = 26 quantitative, n = 21 qualitative, and n = 10 multi-method) and their content extracted for summarization.

RESULTS

The majority of studies (n = 43, 75.4%) were descriptive; 14 (24.6%) included interventions, and of those, four were experimental. Few studies used a clearly defined theoretical framework, or validated tools to measure social support. Studies explored perceived social support needs of siblings, the provision and availability of formal support through interventions and related outcomes, and informal family social supports. A variety of support types were found to be helpful to siblings in different ways.

CONCLUSIONS

Social support is a prevalent topic in the literature regarding siblings of children with cancer. It is unclear what types of support are most important due to how it has been conceptualized and measured. Despite some methodological limitations, greater levels of social support have been linked to better adaptation among siblings of children with cancer. Future work is warranted to identify the most beneficial types of support for siblings based on their age, developmental stage, and the cancer trajectory.

摘要

目的

社会支持对于健康应对生活应激源至关重要。本范围综述考察了在癌症患儿的兄弟姐妹中,社会支持是如何被概念化、操作化和研究的。确定了当前文献中的空白,并提出了未来的研究方向。

方法

严格的系统范围综述框架指导了我们的过程。在 Medline、Embase、CINAHL、PsycINFO 和 Scopus 中搜索有关癌症患儿兄弟姐妹的社会支持文献。经过筛选,确定了 57 篇文章(n=26 篇定量研究,n=21 篇定性研究,n=10 篇多方法研究),并提取其内容进行总结。

结果

大多数研究(n=43,75.4%)是描述性的;14 项(24.6%)包含干预措施,其中 4 项为实验性的。很少有研究使用明确界定的理论框架或经过验证的工具来衡量社会支持。研究探讨了兄弟姐妹感知到的社会支持需求、通过干预措施提供和可获得的正式支持以及非正式家庭社会支持。发现各种支持类型以不同的方式对兄弟姐妹有帮助。

结论

社会支持是癌症患儿兄弟姐妹文献中的一个普遍主题。由于其概念化和测量方式不明确,因此不清楚哪种类型的支持最重要。尽管存在一些方法学限制,但较高水平的社会支持与癌症患儿兄弟姐妹的更好适应相关。未来的工作需要确定最有益于兄弟姐妹的支持类型,这取决于他们的年龄、发育阶段和癌症轨迹。

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