Bakitas Marie A
Darmouth Medical School, Dartmouth-Hitchcock Medical Center, Section of Palliative Medicine, Lebanon, New Hampshire 03756, USA.
Can J Nurs Res. 2005 Jun;37(2):22-49.
This paper analyzes the evolution and the definition, current use, and application of the concept of self-determination in palliative care research and practice. Undertaken as a foundation for the development of a palliative care research program, the analysis considers selected historical, bioethical, legal, clinical, and relevant medical and nursing health-care literature on adults with chronic and terminal illness. Based on a synthesis of the literature, a conceptual definition is proposed and ways of integrating the concept of self-determination into palliative care intervention research are identified.
本文分析了姑息治疗研究与实践中自主决定权概念的演变、定义、当前用途及应用情况。作为开展姑息治疗研究项目的基础,该分析考量了有关患有慢性和晚期疾病成年人的部分历史、生物伦理、法律、临床以及相关医学和护理保健文献。基于文献综述,提出了一个概念性定义,并确定了将自主决定权概念纳入姑息治疗干预研究的方法。