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自主决定权:姑息治疗中概念分析及其对研究的启示

Self-determination: analysis of the concept and implications for research in palliative care.

作者信息

Bakitas Marie A

机构信息

Darmouth Medical School, Dartmouth-Hitchcock Medical Center, Section of Palliative Medicine, Lebanon, New Hampshire 03756, USA.

出版信息

Can J Nurs Res. 2005 Jun;37(2):22-49.

PMID:16092777
Abstract

This paper analyzes the evolution and the definition, current use, and application of the concept of self-determination in palliative care research and practice. Undertaken as a foundation for the development of a palliative care research program, the analysis considers selected historical, bioethical, legal, clinical, and relevant medical and nursing health-care literature on adults with chronic and terminal illness. Based on a synthesis of the literature, a conceptual definition is proposed and ways of integrating the concept of self-determination into palliative care intervention research are identified.

摘要

本文分析了姑息治疗研究与实践中自主决定权概念的演变、定义、当前用途及应用情况。作为开展姑息治疗研究项目的基础,该分析考量了有关患有慢性和晚期疾病成年人的部分历史、生物伦理、法律、临床以及相关医学和护理保健文献。基于文献综述,提出了一个概念性定义,并确定了将自主决定权概念纳入姑息治疗干预研究的方法。

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Control in patients with advanced cancer: an interpretative phenomenological study.晚期癌症患者的控制感:一项阐释现象学研究。
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Health Professionals Palliative Care Education for Older Adults: Overcoming Ageism, Racism, and Gender Bias.
针对老年人的健康专业人员姑息治疗教育:克服年龄歧视、种族主义和性别偏见。
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BMC Palliat Care. 2021 May 17;20(1):69. doi: 10.1186/s12904-021-00762-x.