Larson Jenny, Franzén-Dahlin Asa, Billing Ewa, Arbin Magnus, Murray Veronica, Wredling Regina
Doctoral student, Department of Nursing, Karolinska Institutet, Stockholm, Sweden.
J Clin Nurs. 2005 Sep;14(8):995-1003. doi: 10.1111/j.1365-2702.2005.01206.x.
The aim of the present study was to determine the impact of a nurse-led support and education programme for improving the spouses' perceived general quality of life, life situation, general well-being and health state.
Stroke is a disease with great consequences for the patients and their families. The spouses often feel obligated to care for the patient, providing psychological and physical support and having to cope with the patient's physical and cognitive impairments. This might lead to increased problems, as family members struggle to adapt to their new roles and responsibilities.
Longitudinal, randomized controlled trial. One hundred spouses were randomly assigned to intervention or control groups, 50 in each group. The intervention group participated in a support and education programme, six times during six months, led by stroke specialist nurses. Both groups were followed for 12 months.
No significant differences were found, between intervention and control groups, over time. In the sub analyses, we found that the group attending 5-6 times had a significant decrease in negative well-being and increased quality of life over time, while the group attending fewer times had a significant decrease in positive well-being and health state, similar to the control group, which also had a significant decrease in negative and general well-being.
A support and education programme might have a positive effect on spouses' well-being, on condition that they attend at least five times.
To facilitate the spouses' role as informal caregivers to the stroke patients, further development of the support and education programme used in the present study is needed, including empowerment approach and implementation of coping strategies.
本研究的目的是确定一项由护士主导的支持与教育计划对改善配偶所感知的总体生活质量、生活状况、总体幸福感和健康状况的影响。
中风是一种对患者及其家庭影响重大的疾病。配偶往往觉得有义务照顾患者，提供心理和身体上的支持，并且不得不应对患者的身体和认知障碍。随着家庭成员努力适应他们的新角色和责任，这可能会导致更多问题。
纵向随机对照试验。100名配偶被随机分为干预组或对照组，每组50人。干预组参加了一项由中风专科护士在六个月内主持六次的支持与教育计划。两组均随访12个月。
随着时间推移，干预组和对照组之间未发现显著差异。在亚组分析中，我们发现参加5至6次的组随着时间推移负面幸福感显著降低，生活质量提高，而参加次数较少的组正面幸福感和健康状况显著降低，与对照组类似，对照组的负面和总体幸福感也显著降低。
一项支持与教育计划可能对配偶的幸福感有积极影响，条件是他们至少参加五次。
为促进配偶作为中风患者非正式照料者的角色，需要进一步发展本研究中使用的支持与教育计划, 包括赋权方法和应对策略的实施。
