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生活质量及其测量:重要原则与指南

Quality of life and its measurement: important principles and guidelines.

作者信息

Verdugo M A, Schalock R L, Keith K D, Stancliffe R J

机构信息

INICO, University of Salamanca, Salamanca, Spain.

出版信息

J Intellect Disabil Res. 2005 Oct;49(Pt 10):707-17. doi: 10.1111/j.1365-2788.2005.00739.x.

DOI:10.1111/j.1365-2788.2005.00739.x
PMID:16162115
Abstract

BACKGROUND

The importance of the valid assessment of quality of life (QOL) is heightened with the increased use of the QOL construct as a basis for policies and practices in the field of intellectual disability (ID).

METHOD

This article discusses the principles that should guide the measurement process, the major interrogatories (i.e. who, what, when, where, why, and how) of QOL measurement, issues and procedures in the cross-cultural measurement of QOL, and the current uses of QOL data.

RESULTS

Based on the above methods, the article presents a number of important guidelines regarding QOL measurement.

CONCLUSION

From a measurement perspective the use of the QOL construct is changing. Initially it was used as a sensitizing notion, social construct, and unifying theme. Increasingly, it is being used as conceptual framework for assessing quality outcomes, a social construct that guides quality enhancement strategies, and a criterion for assessing the effectiveness of those strategies. This new role places additional emphasis on the valid assessment of one's QOL.

摘要

背景

随着生活质量(QOL)这一概念越来越多地被用作智力残疾(ID)领域政策和实践的基础,对其进行有效评估的重要性日益凸显。

方法

本文讨论了应指导测量过程的原则、生活质量测量的主要问题(即谁、什么、何时、何地、为何以及如何)、生活质量跨文化测量中的问题和程序,以及生活质量数据的当前用途。

结果

基于上述方法,本文提出了一些关于生活质量测量的重要指导方针。

结论

从测量的角度来看,生活质量这一概念的用途正在发生变化。最初,它被用作一种敏感化概念、社会建构和统一主题。现在,它越来越多地被用作评估质量结果的概念框架、指导质量提升策略的社会建构,以及评估这些策略有效性的标准。这一新角色进一步强调了对个人生活质量进行有效评估的重要性。

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