Ruddick Loraine
Psychology Services, Sutton Coldfield, UK.
Br J Health Psychol. 2005 Nov;10(Pt 4):559-70. doi: 10.1348/135910705X43769.
The rights and needs of people with intellectual disabilities are being acknowledged within Department of Health policies. In spite of this, however, it is frequently cited that people with intellectual disabilities are vulnerable to many health problems but have poor access to health-related services. There are many factors that can act as barriers to people with intellectual disabilities enjoying good health and accessing services. These include: (a) a lack of clarity regarding responsibilities for ensuring that health policies are operationalized; (b) social and residential aspects of life being emphasized within the quality of life framework for evaluating services for people with intellectual disabilities, with health as an under-represented domain; (c) a lack of reliable and valid measures that can be used with carers and people with intellectual disabilities to explore health, particularly in comparison to literature on the general population; (d) potential communication difficulties (between the person with intellectual disabilities, their carers and health staff) that can impact on decision-making processes from early identification of health problems through to the stage of gaining appropriate treatment. These areas are discussed giving rise to questions and challenges for policy makers, researchers and clinicians.
智力残疾人士的权利和需求在卫生部政策中得到了承认。然而,尽管如此,人们经常提到,智力残疾人士容易出现许多健康问题,但获得与健康相关服务的机会却很少。有许多因素可能成为智力残疾人士享有良好健康和获得服务的障碍。这些因素包括:(a) 在确保卫生政策得到实施方面,责任不明确;(b) 在评估为智力残疾人士提供的服务的生活质量框架中,强调生活的社会和居住方面,而健康作为一个代表性不足的领域;(c) 缺乏可用于护理人员和智力残疾人士以探索健康状况的可靠和有效的措施,特别是与关于普通人群的文献相比;(d) (智力残疾人士、其护理人员和卫生工作人员之间)潜在的沟通困难,这可能影响从早期发现健康问题到获得适当治疗阶段的决策过程。对这些领域进行了讨论,从而给政策制定者、研究人员和临床医生带来了问题和挑战。