Hudson Peter L, Aranda Sanchia, Hayman-White Karla
Center for Palliative Care, School of Nursing, University of Melbourne, Australia.
J Pain Symptom Manage. 2005 Oct;30(4):329-41. doi: 10.1016/j.jpainsymman.2005.04.006.
This study describes an evaluation of a psycho-educational intervention for family caregivers of patients dying of cancer at home. In a randomized controlled trial, participants (n = 106) received standard home-based palliative care services (n = 52) or these services plus the new intervention (n = 54). Data were collected at three time points: upon commencement of home-based palliative care (Time 1), five weeks later (Time 2), and then eight weeks following patient death (Time 3). No intervention effects were identified with respect to preparedness to care, self-efficacy, competence, and anxiety. However, participants who received the intervention reported a significantly more positive caregiver experience than those who received standard care at both Times 2 and 3. The findings indicate that it is possible to increase caregiver rewards despite being immersed in challenging circumstances that often yield considerable negative psychosocial sequelae. Furthermore, it is feasible for health professionals to discuss emotive topics, such as impending death, with caregivers without adverse effects.
本研究描述了一项针对在家中死于癌症患者的家庭照顾者的心理教育干预评估。在一项随机对照试验中,参与者(n = 106)接受标准的居家姑息治疗服务(n = 52)或这些服务加新干预措施(n = 54)。在三个时间点收集数据:居家姑息治疗开始时(时间1)、五周后(时间2)以及患者死亡八周后(时间3)。在护理准备、自我效能感、能力和焦虑方面未发现干预效果。然而,接受干预的参与者在时间2和时间3时报告的照顾者体验均明显比接受标准护理的参与者更积极。研究结果表明,尽管处于往往会产生相当多负面心理社会后遗症的具有挑战性的环境中,但仍有可能增加照顾者的回报。此外,卫生专业人员与照顾者讨论诸如即将到来的死亡等情感话题是可行的,且不会产生不良影响。