Holm Maja, Årestedt Kristofer, Carlander Ida, Fürst Carl-Johan, Wengström Yvonne, Öhlen Joakim, Alvariza Anette
Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden.
Palliative Research Centre and Department of Health Care Sciences, Ersta Sköndal University College, Stockholm, Sweden.
Psychooncology. 2016 Jul;25(7):795-802. doi: 10.1002/pon.4004. Epub 2015 Oct 9.
Family caregivers in cancer and palliative care often face heavy responsibilities and feel insufficiently prepared for the situation as caregivers. This study evaluates short-term and long-term effects of a psycho-educational group intervention aiming to increase preparedness for family caregiving in specialized palliative home care.
The study design was a randomized control trial where family caregivers were allocated either to an intervention or control group. The intervention was delivered as a program including three sessions by health professionals (physician, nurse, and social worker/priest). Family caregivers from 10 specialized palliative home care settings were included. Questionnaires with validated instruments at baseline, upon completion, and 2 months following the intervention were used to measure effects of the intervention. The primary outcome was preparedness for caregiving in family caregivers.
In total, 21 intervention programs were delivered, and 119 family caregivers completed all three measurements. The intervention group had significantly increased their preparedness for caregiving in both the short-term and long-term follow-up compared with the control group. The intervention group also reported significantly increased competence for caregiving in short-term but not long. No effects of the intervention were found on rewards for caregiving, caregiver burden, health, anxiety, or depression.
The psycho-educational intervention has the potential to be used by health professionals to improve preparedness for caregiving among family caregivers in palliative care both in short and long terms. Copyright © 2015 John Wiley & Sons, Ltd. Copyright © 2015 John Wiley & Sons, Ltd.
癌症和姑息治疗中的家庭照顾者常常面临沉重的责任，且感觉自己作为照顾者对这种情况准备不足。本研究评估了一种心理教育小组干预措施的短期和长期效果，该干预旨在提高在专科姑息家庭护理中对家庭照顾的准备程度。
研究设计为随机对照试验，将家庭照顾者分配到干预组或对照组。干预作为一个项目实施，包括由健康专业人员（医生、护士和社会工作者/牧师）进行的三次课程。纳入了来自10个专科姑息家庭护理机构的家庭照顾者。在基线、干预结束时以及干预后2个月使用经过验证的工具的问卷来测量干预效果。主要结局是家庭照顾者对照顾的准备程度。
总共实施了21个干预项目，119名家庭照顾者完成了所有三项测量。与对照组相比，干预组在短期和长期随访中对照顾的准备程度均显著提高。干预组还报告称，短期内照顾能力显著提高，但长期则不然。未发现干预对照顾奖励、照顾者负担、健康、焦虑或抑郁有影响。
心理教育干预措施有可能被健康专业人员用于改善姑息治疗中家庭照顾者在短期和长期内对照顾的准备程度。版权所有© 2015约翰·威利父子有限公司。版权所有© 2015约翰·威利父子有限公司。
