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台湾地区民众关于血液透析决策的现象学

The phenomenology of deciding about hemodialysis among Taiwanese.

作者信息

Lin Chiu-Chu, Lee Bih-O, Hicks Frank D

机构信息

School of Nursing, Kaohsiung Medical University, Taiwan.

出版信息

West J Nurs Res. 2005 Nov;27(7):915-29; discussion 930-4. doi: 10.1177/0193945905278390.

Abstract

The purpose of this study was to describe the experience of making hemodialysis choices among Taiwanese with end-stage renal disease (ESRD). Using Colaizzi's phenomenological method, 12 ESRD patients provided in-depth, audiotaped interviews that were then transcribed and analyzed. The results of the data analysis revealed three broad categories and ten themes. The first category, confronting the dialysis treatment, included four themes: fear caused by false beliefs, a sense of threat to life, concern about the impairment of self-concept, and fear of physical limitations. The second category, seeking further information, included three themes: getting opinions of family members, seeking professional confirmation, and exploring alternative treatments. The third category, living with dialysis, included three themes: worsening symptoms, support of the family, and law of causation. These categories and themes revealed the difficulties that ESRD patients dealt with and the influence these difficulties and their culture had on the treatment choice.

摘要

本研究的目的是描述台湾终末期肾病(ESRD)患者在做出血液透析选择时的经历。采用科莱齐的现象学方法,对12名ESRD患者进行了深入的录音访谈,随后进行转录和分析。数据分析结果揭示了三大类和十个主题。第一类,面对透析治疗,包括四个主题:错误观念导致的恐惧、对生命的威胁感、对自我概念受损的担忧以及对身体限制的恐惧。第二类,寻求更多信息,包括三个主题:征求家庭成员意见、寻求专业确认以及探索替代治疗方法。第三类,与透析共存,包括三个主题:症状恶化、家人的支持以及因果律。这些类别和主题揭示了ESRD患者所面临的困难,以及这些困难及其文化对治疗选择的影响。

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