Bloemen-Vrencken Jos H A, Post Marcel W M, Hendriks Jos M S, De Reus Elly C E, De Witte Luc P
Institute for Rehabilitation Research (IRv), Rehabilitation Centre Hoensbroeck, PO Box 192, 6430 AD Hoensbroeck, The Netherlands.
Disabil Rehabil. 2005 Nov 30;27(22):1381-9. doi: 10.1080/09638280500164685.
To investigate the prevalence of health problems among persons with spinal cord injury (SCI) living in the Netherlands, to identify the problems experienced as most important, and to analyse the experienced impact of these most important problems on daily activities and social life.
Postal survey among all members of the Dutch Association of Patients with SCI. The questionnaire focused on 26 health problems: 13 secondary impairments, 8 problems of daily living and 5 psychosocial problems.
The respondents (response rate 45.5%, 454 persons) experienced an average of 8 health problems. The most frequently occurring problems regarded bladder and bowel regulation, spasms, pain, oedema and sexuality. Except for oedema, these problems were also most often cited as the most important. The most disabling condition for both daily and social activities was pain. Few significant relationships were found between the prevalence of health problems and the level, completeness and duration of the injury or gender.
Persons with SCI living in the community experience many health problems and limitations in daily activities and social life due to these problems. The occurrence of these problems does not diminish with increasing time after injury. This strongly emphasises the need for follow-up care.
调查生活在荷兰的脊髓损伤（SCI）患者的健康问题患病率，确定被认为最重要的问题，并分析这些最重要的问题对日常活动和社会生活的影响。
对荷兰脊髓损伤患者协会的所有成员进行邮政调查。问卷聚焦于26个健康问题：13个继发性损伤、8个日常生活问题和5个心理社会问题。
受访者（回复率45.5%，共454人）平均经历了8个健康问题。最常出现的问题涉及膀胱和肠道调节、痉挛、疼痛、水肿和性功能。除水肿外，这些问题也最常被认为是最重要的。对日常和社会活动造成最大障碍的是疼痛。在健康问题的患病率与损伤的程度、完整性和持续时间或性别之间，未发现显著关联。
生活在社区中的脊髓损伤患者经历许多健康问题，并因这些问题在日常活动和社会生活中受到限制。这些问题的发生并不会随着受伤时间的增加而减少。这强烈强调了后续护理的必要性。
