Rudolf Magnus Institute of Neuroscience and Center of Excellence for Rehabilitation Medicine, University Medical Center Utrecht and Rehabilitation Center De Hoogstraat, Utrecht, the Netherlands.
Disabil Rehabil. 2013 Jun;35(13):1104-10. doi: 10.3109/09638288.2012.712196. Epub 2012 Sep 20.
To describe the prevalence of secondary health conditions (SHCs) (urinary tract and bowel problems, pressure ulcers, spasticity, musculoskeletal and neuropathic pain, sexual dysfunction, respiratory and cardiovascular disorders) in persons with long-term spinal cord injury (SCI), and to explore the impact of SHCs on fitness, active lifestyle, participation and well-being.
A time since injury (TSI)-stratified cross-sectional study among 300 persons between 28- and 65-year-old with a SCI for at least 10 years. Strata of TSI are 10-19, 20-29, and 30 or more years. All eight Dutch rehabilitation centres with a SCI unit will participate. Participants will be invited for a 1-day visit to the rehabilitation centre for an aftercare check-up by the local SCI rehabilitation physician (neurological impairment, SHCs and management), physical tests by a trained research assistant (lung function, wheelchair skills, physical capacity), and they will be asked to complete a self-report questionnaire in advance.
Not applicable.
This study will provide knowledge on the health status and functioning of persons aging with SCI living in the Netherlands. This knowledge will help us to develop predictive models for the occurrence of SHCs and to formulate guidelines to improve health care for persons with long-term SCI.
描述长期脊髓损伤（SCI）患者的继发性健康状况（SHC）（尿路和肠道问题、压疮、痉挛、肌肉骨骼和神经病理性疼痛、性功能障碍、呼吸和心血管疾病）的流行情况，并探讨这些 SHC 对健康、积极生活方式、参与度和幸福感的影响。
一项在年龄在 28 至 65 岁之间、SCI 至少 10 年的 300 名患者中进行的按时间（TSI）分层的横断面研究。TSI 的分层为 10-19 年、20-29 年和 30 年或更长时间。所有 8 家具有 SCI 病房的荷兰康复中心都将参与。将邀请参与者前往康复中心进行为期一天的就诊，由当地 SCI 康复医生进行后续检查（神经损伤、SHC 和管理）、由经过培训的研究助理进行身体测试（肺功能、轮椅技能、身体能力），并要求他们提前完成一份自我报告问卷。
不适用。
这项研究将提供有关在荷兰生活的老龄化 SCI 患者的健康状况和功能的知识。这些知识将帮助我们开发预测 SHC 发生的模型，并制定改善长期 SCI 患者医疗保健的指南。
