Dixon-Woods Mary, Williams Simon J, Jackson Clare J, Akkad Andrea, Kenyon Sara, Habiba Marwan
Department of Health Sciences, University of Leicester, 22-28 Princess Road West, Leicester LE1 6TP, UK.
Soc Sci Med. 2006 Jun;62(11):2742-53. doi: 10.1016/j.socscimed.2005.11.006. Epub 2005 Dec 15.
The 'informed consent' process has been placed at the centre of bioethical and policy discourses about how the autonomy and rights of patients can best be protected. Although there has been critical analysis of how the process functions in relation to participation in research and particular ethical 'dilemmas', there has been little examination of the routine business of consenting to medical procedures. Evidence is now beginning to emerge that people may consent to surgery even when reluctant to do so. In this paper, we develop an analysis informed by Bourdieusian and interactionist social theory of the accounts of 25 British women who consented to surgery in obstetrics and gynaecology. Of these, nine were ambivalent or opposed to having an operation. When faced with a consent form, women's accounts suggest that they rarely do anything other than obey professionals' requests for a signature. Women's capacity to act is reduced as they become enmeshed in the hospital structure of tacit, socially imposed rules of conduct. However, the interactionist account of power operating through the social rules of particular situated encounters, and the sanctions associated with rule-breaking, may not provide a sufficiently powerful explanation for why women submit to surgery they are opposed or ambivalent towards. Bourdieu's concepts of habitus, capital and symbolic power/violence offer a potentially more elaborated account, by showing how the practical logic that women apply in the field of surgery confers a 'sense of place' relative to professionals. Women experience deficits in capital, intensified by their physical vulnerability in critical situations, that severely constrain their ability to exercise choice. This work demonstrates the weakness of the consent process as a safeguard of autonomy. Far from reinforcing autonomy, the process may reinforce rather than disrupt passivity, but more generally our findings raise the question of the extent to which autonomy is an illusory goal.
“知情同意” 过程已成为关于如何最好地保护患者自主权和权利的生物伦理与政策讨论的核心。尽管对于该过程在参与研究及特定伦理 “困境” 方面的运作情况已有批判性分析,但对于同意医疗程序的日常事务却鲜有考察。现在有证据表明,人们可能即使不情愿也会同意手术。在本文中,我们依据布迪厄和互动主义社会理论,对25名同意接受妇产科手术的英国女性的叙述进行分析。其中,9人对手术持矛盾态度或反对手术。面对同意书时,女性的叙述表明,她们除了顺从专业人员要求签字外几乎别无他法。随着女性陷入医院中隐含的、社会强加的行为规则结构,她们的行动能力会降低。然而,互动主义关于权力通过特定情境遭遇中的社会规则运作以及与违规相关制裁的解释,可能无法充分有力地解释为何女性会接受她们反对或持矛盾态度的手术。布迪厄的惯习、资本和象征权力 / 暴力概念提供了一个可能更详尽的解释,它展示了女性在手术领域应用的实践逻辑如何赋予她们相对于专业人员的 “位置感”。女性在资本方面存在不足,在危急情况下她们身体上的脆弱性又加剧了这种不足,这严重限制了她们行使选择权的能力。这项研究表明同意过程作为自主权保障的薄弱性。该过程远非增强自主权,反而可能强化而非打破被动性,但更普遍地说,我们的研究结果提出了自主权在多大程度上是一个虚幻目标的问题。