Talosig-Garcia Maria, Davis Sharon W
National Cancer Institute's Cancer Information Service, Northern California Cancer Center, Fremont, California 94358, USA.
J Health Commun. 2005;10 Suppl 1:53-64. doi: 10.1080/10810730500263638.
Few population-based studies have been conducted with minority breast cancer patients in the United States to understand their information-seeking behaviors. We examined the resources minority breast cancer patients used and the extent to which the Internet was being utilized by Hispanic and African American breast cancer patients. A random sample of 388 Hispanic and African American breast cancer female patients was obtained from the Sacramento Cancer Surveillance Program in California. Various survey and data collection tools were researched and adapted to create the 44-item questionnaire. Subjects were asked to participate in a telephone interview. Of the 388 cases, 74% (n = 287) consented to participate in our study. Sixty-three percent (n = 181) received cancer-related information at the time of their diagnosis; 58% reported that a health care professional provided them with this information. Only 17% of study respondents had ever used the Internet. The top 3 sources for cancer information were books, brochures, and pamphlets (98%); doctor or other health professionals (97%); and spouse or partner, family members, friends, or all of these (62%). None of the respondents indicated accessing the National Cancer Institute's cancer.gov website. Minority breast cancer patients were using the Internet for cancer-related information at a very low rate.
在美国，针对少数族裔乳腺癌患者开展的基于人群的研究较少，以了解他们的信息寻求行为。我们调查了少数族裔乳腺癌患者使用的资源，以及西班牙裔和非裔美国乳腺癌患者利用互联网的程度。从加利福尼亚州萨克拉门托癌症监测项目中随机抽取了388名西班牙裔和非裔美国乳腺癌女性患者。研究并采用了各种调查和数据收集工具，以创建一份包含44个条目的问卷。受试者被要求参加电话访谈。在这388个病例中，74%（n = 287）同意参与我们的研究。63%（n = 181）在确诊时获得了癌症相关信息；58%报告称是医疗保健专业人员为他们提供了这些信息。只有17%的研究受访者曾使用过互联网。癌症信息的前三大来源是书籍、宣传册和小册子（98%）；医生或其他医疗专业人员（97%）；以及配偶或伴侣、家庭成员、朋友或所有这些人（62%）。没有受访者表示访问过美国国立癌症研究所的cancer.gov网站。少数族裔乳腺癌患者使用互联网获取癌症相关信息的比例非常低。
