Gammon Deede, Arsand Eirik, Walseth Ole Anders, Andersson Niklas, Jenssen Martin, Taylor Ted
Norwegian Centre for Telemedicine, Tromsø, Norway.
J Med Internet Res. 2005 Nov 21;7(5):e57. doi: 10.2196/jmir.7.5.e57.
Children with type 1 diabetes and their parents face rigorous procedures for blood glucose monitoring and regulation. Mobile telecommunication systems show potential as an aid for families' self-management of diabetes.
A prototype designed to automatically transfer readings from a child's blood glucose monitor to their parent's mobile phone was tested. In this formative stage of development, we sought insights into the appropriateness of the concept, feasibility of use, and ideas for further development and research.
During four months, a self-selected sample of 15 children (aged 9 to 15 years) with type 1 diabetes and their parents (n = 30) used the prototype approximately three times daily. Parent and child experiences were collected through questionnaires and through interviews with 9 of the parents.
System use was easily integrated into everyday life, and parents valued the sense of reassurance offered by the system. Parents' ongoing struggle to balance control of their children with allowing independence was evident. For children who measured regularly, use appeared to reduce parental intrusions. For those who measured irregularly, however, parental reminders (eg, "nagging") appeared to increase. Although increased reminders could be considered a positive outcome, they can potentially increase parent-child conflict and thus also undermine proper metabolic control. Parents felt that system appropriateness tapered off with the onset of adolescence, partly due to a potential sense of surveillance from the child's perspective that could fuel oppositional behavior. Parental suggestions for further developments included similar alerts of irregular insulin dosages and automatically generated dietary and insulin dosage advice.
User enthusiasm suggests that such systems might find a consumer market regardless of whether or not they ultimately improve health outcomes. Thus, more rigorous studies are warranted to inform guidelines for appropriate use. Potentially fruitful approaches include integrating such systems with theory-based parenting interventions and approaches that can aid in interpreting and responding to experiences of surveillance, virtual presence, and balances of power in e-mediated relationships.
1型糖尿病患儿及其父母面临严格的血糖监测和调节程序。移动电信系统显示出有助于家庭自我管理糖尿病的潜力。
对一个旨在将儿童血糖监测仪的读数自动传输到其父母手机上的原型进行测试。在这个发展的形成阶段,我们寻求对该概念的适宜性、使用的可行性以及进一步开发和研究的想法的见解。
在四个月的时间里,15名1型糖尿病患儿(9至15岁)及其父母(n = 30)的自我选择样本每天大约使用该原型三次。通过问卷调查以及与9名父母进行访谈来收集父母和孩子的体验。
系统的使用很容易融入日常生活,父母重视该系统所提供的安心感。父母在平衡对孩子的控制与给予其独立性方面持续存在的挣扎是显而易见的。对于定期测量的孩子,使用该系统似乎减少了父母的干预。然而,对于那些不定期测量的孩子,父母的提醒(例如“唠叨”)似乎增加了。虽然增加提醒可以被视为一个积极的结果,但它们可能会增加亲子冲突,从而也会破坏适当的代谢控制。父母认为随着青春期的到来,系统的适宜性逐渐降低,部分原因是从孩子的角度来看可能存在一种监视感,这可能会引发对立行为。父母对进一步开发的建议包括对不规则胰岛素剂量的类似警报以及自动生成的饮食和胰岛素剂量建议。
用户的热情表明,无论此类系统最终是否能改善健康结果,它们都可能找到消费市场。因此,有必要进行更严格的研究以为适当使用的指南提供信息。潜在富有成效的方法包括将此类系统与基于理论的育儿干预措施以及有助于解释和应对电子媒介关系中的监视、虚拟存在和权力平衡体验的方法相结合。