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1型糖尿病幼儿父母的夜间照料行为:与疾病特征及父母功能的关联

Nighttime caregiving behaviors among parents of young children with Type 1 diabetes: associations with illness characteristics and parent functioning.

作者信息

Monaghan Maureen C, Hilliard Marisa E, Cogen Fran R, Streisand Randi

机构信息

Department of Psychology, Children's National Medical Center, 111 Michigan Avenue NW, Washington, DC 200010, USA.

出版信息

Fam Syst Health. 2009 Mar;27(1):28-38. doi: 10.1037/a0014770.

DOI:10.1037/a0014770
PMID:19630443
Abstract

Parents of young children with Type 1 diabetes describe daily management as relentless. Nighttime caregiving, including nocturnal blood glucose monitoring (NBGM), occurs and may increase parents' anxiety and stress. The goal of this study was to examine the frequency of NBGM among parents of young children with Type 1 diabetes, and to identify children's illness characteristics and parents' fear of hypoglycemia, anxiety, and parenting stress associated with nighttime monitoring. Parents (N = 71) of children with Type 1 diabetes ages 2 to 6 completed questionnaires to assess frequency of NBGM, illness characteristics and health outcomes, and parent concern. Approximately one third of parents reported regularly monitoring their child's blood glucose level after their child was asleep. Frequency of NBGM was positively associated with basal-bolus regimen, longer illness duration, and increased parent-reported anxiety and parenting stress (p < .05). NBGM is prevalent among parents of young children with Type 1 diabetes, suggesting that parents' nighttime caregiving practices and resulting sleep disruption should be routinely addressed in clinical practice. Further investigations of NBGM, child health outcomes, and parent quality of life are warranted.

摘要

患有1型糖尿病的幼儿的父母表示,日常管理工作十分繁重。夜间护理,包括夜间血糖监测(NBGM)时有发生,这可能会增加父母的焦虑和压力。本研究的目的是调查患有1型糖尿病的幼儿父母进行夜间血糖监测的频率,并确定孩子的疾病特征以及父母对低血糖的恐惧、焦虑和与夜间监测相关的育儿压力。2至6岁患有1型糖尿病儿童的父母(N = 71)完成了问卷调查,以评估夜间血糖监测的频率、疾病特征和健康结果以及父母的担忧。约三分之一的父母报告说,在孩子入睡后会定期监测其血糖水平。夜间血糖监测的频率与基础-餐时胰岛素治疗方案、较长的病程以及父母报告的焦虑和育儿压力增加呈正相关(p < 0.05)。夜间血糖监测在患有1型糖尿病的幼儿父母中很普遍,这表明在临床实践中应常规关注父母的夜间护理行为及其导致的睡眠中断情况。有必要对夜间血糖监测、儿童健康结果和父母生活质量进行进一步调查。

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