Hacker M R, Primeaux J, Manco-Johnson M J
Mountain States Regional Hemophilia and Thrombosis Center, University of Colorado Health Sciences Center, Aurora, CO, USA.
Haemophilia. 2006 Mar;12(2):163-8. doi: 10.1111/j.1365-2516.2006.01199.x.
The importance of patient satisfaction has continued to grow such that patient satisfaction is now viewed as a vital component of health-care delivery. This is evidenced by the expanding body of research in the area and the use of measures of patient satisfaction as indicators of health-care quality. The value of patient satisfaction is particularly apparent in the setting of chronic disease where medical care utilization is high, compliance with therapy is critical and the patient-provider relationship is often long-term. Although several validated tools exist to quantify general measures of patient satisfaction, there is a recognized need for disease-specific instruments. Not only are there issues that are unique to haemophilia, but many patients receive care via a specialized comprehensive clinic model. The authors were unaware of an instrument that could adequately address patient satisfaction issues specific to haemophilia; thus, they undertook to develop one. The patient satisfaction survey presented here contains fixed-choice, Likert-scale and open-ended questions adapted from previously validated questionnaires. Assessment of face validity and internal consistency indicate that the survey is measuring one underlying construct - patient satisfaction. Information acquired through this survey will provide a quantitative assessment of patient satisfaction within a clinic population of persons with bleeding disorders and could be used to guide decisions regarding provision of health-care services.
患者满意度的重要性持续上升，以至于如今患者满意度被视为医疗服务的一个关键组成部分。该领域不断扩大的研究以及将患者满意度测量作为医疗质量指标的应用都证明了这一点。患者满意度的价值在慢性病背景下尤为明显，因为慢性病患者医疗服务利用率高，治疗依从性至关重要，且医患关系往往是长期的。尽管存在几种经过验证的工具来量化患者满意度的一般测量指标，但人们公认需要针对特定疾病的工具。血友病不仅存在一些独特问题，而且许多患者通过专门的综合诊所模式接受治疗。作者未发现有能充分解决血友病患者特定满意度问题的工具；因此，他们着手开发一种。此处呈现的患者满意度调查包含从先前经过验证的问卷改编而来的固定选择、李克特量表和开放式问题。表面效度和内部一致性评估表明，该调查正在测量一个潜在结构——患者满意度。通过这项调查获得的信息将对出血性疾病门诊患者群体的患者满意度进行定量评估，并可用于指导有关提供医疗服务的决策。
