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参与者在持续的姑息性家庭护理期间参加针对家庭成员的支持小组干预的体验。

Participants' experiences of a support group intervention for family members during ongoing palliative home care.

作者信息

Milberg Anna, Rydstrand Kristina, Helander Lena, Friedrichsen Maria

机构信息

Division of Geriatrics, Faculty of Health Sciences, Linköping University, Sweden.

出版信息

J Palliat Care. 2005 Winter;21(4):277-84.

PMID:16483097
Abstract

The aim of this study was to describe family members' experiences of participation in a support group intervention during ongoing palliative home care. Four taped-recorded focus group interviews were conducted (in total, 13 persons) and a questionnaire was completed by 19 of 22 possible family members. The participants experienced increased perception of support and knowledge, and would recommend that a person in a similar situation join a support group. Categories that emerged in the qualitative content analysis concerned "reasons for support group participation", "group composition contributed to group cohesion", "experience and sensitivity of group leader was a catalyst", "meaningful dialogue helped to solve everyday problems", "sense of cohesion increased effectiveness of the group", and "group sessions and post-session reflection increased perception of inner strength". Support groups for family members seem to be a valuable contribution during ongoing palliative home care. The findings are discussed in relation to recruitment into and ending of support groups.

摘要

本研究的目的是描述家庭成员在持续的姑息家庭护理期间参与支持小组干预的经历。进行了四次录音焦点小组访谈(共13人),22名可能参与的家庭成员中有19人完成了问卷调查。参与者感受到支持和知识的增加,并建议处于类似情况的人加入支持小组。定性内容分析中出现的类别包括“参与支持小组的原因”、“小组成员构成促进了小组凝聚力”、“组长的经验和敏感度是催化剂”、“有意义的对话有助于解决日常问题”、“凝聚力增强了小组的有效性”以及“小组会议和会后反思增强了内心力量感”。家庭成员支持小组似乎是持续姑息家庭护理期间的一项宝贵贡献。研究结果结合支持小组的招募和结束进行了讨论。

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